Struggling with Lupus: Seeking Advice

Currently under assessment for lupus, it’s almost certainly an immune system disorder I have. Been struggling with it for the last 3 years I think triggered by stress, my fatigue is so bad my life has basically stopped, I was surprised when my doctor suggested lupus as I’m Caucasian and have heard it’s uncommon in my race and I haven’t experienced a facial rash of any kind, but the more I look into lupus the more I relate. My main concerning symptom as of recent that lead to a lot of blood work is chest pain and tachycardia which had me in the emergency room, I’m only 19 I have very low blood pressure usually but a high heart rate and I’m just tired, want to know how to get better.

Your answer

nic.elodeon

1y ago

I have pre-/undifferentiated lupus and I bounced around a lot of diagnoses before getting mine. I hope your tests answer your questions and help you feel less fatigue!

Igglepiggle

1y ago

thank you this support is really lovely I only just heard of this app and didn’t expect any responses, it’s been a long while of living with no answers but it does feel good to finally be being listened to by doctors and starting on a diagnosis I really hope I can get more answers and maybe some treatment I had to drop out of school from it which hurt as I’ve always been big on my education but they weren’t supportive enough so I’m really hoping to get better and be able to have a life again

Lilspoonie

1y ago

Hey I’m 21 so similar age and also white. I have been diagnosed with an unspecified connective tissue disorder (they’re saying probable early lupus) so certainly possible for you. Definitely good to catch early so they can get the right medication and protect your organs

Igglepiggle

1y ago

the doctor said they found “3 connective tissue markers” in my blood result from the rheumatoid exam, do you know what that means as I’ve been puzzled? Could that mean like elbow, finger, knee? Or skin, joints, organs?

Igglepiggle

1y ago

thank you, yes I was under a lot of stress 2/3 years ago and since then I’ve been really unwell, unbearable fatigue and a lot of aches and random pain, I recently realised I’m likely hyper-mobile and well it’s all moved very quickly from me thinking it’s all just my adhd to realising how my issues are from my physical health and I’m just hoping I can figure it out and get my fatigue under control and of course prevent any terrible illness, as it’s been debilitating

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

About Alike Wisdom Blog FAQ Editorial Team All Conditions All Posts All Communities

Your Privacy Stories Community Guidelines Terms of Use Privacy Policy Helplines Contact Us Group Chats Guidelines