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011_Eleven

499d

I am 11 years into this kidney transplant thing and I'm really struggling. I think I had about 2 good years of health before the immunosuppressants ruined everything. I am really wondering if it will ever get better. I feel like I am just constantly sick and yet still expected to somehow work full time and keep up with the rest of life's daily to-do's. I need someone to talk to who understands and who might be able to tell me that it does get better. 😩😭

Top reply
    • 011_Eleven

      401d

      @cobbo93 none of my doctors are even willing to help me with disability even though I had multiple complications due to the stupid anti rejection meds. I can work. I can barely do anything. This sucks so bad.

    • 011_Eleven

      401d

      Nobody told me it would be like this. Nobody told me I'd be suffering this bad. If I had known then what I know now I never would've gotten the transplant. I just don't know what to do.

    • cobbo93

      430d

      I'm 7 years post transplant, I know what you mean. I literally can't physically work due to other health conditions that having renal failure comes with and having to prove it to the government is so hard as its an 'invisible' disease. Here if you need to talk.

      • 011_Eleven

        401d

        @cobbo93 none of my doctors are even willing to help me with disability even though I had multiple complications due to the stupid anti rejection meds. I can work. I can barely do anything. This sucks so bad.

    • crumbs

      453d

      I'm 10 years post kidney transplant And I know exactly what you mean. I have been feeling so burnt out and exhausted lately

    • Lizzieb22

      483d

      Willing to talk here. Struggling and it’s only onto my second year and I just got a uti and I’m pretty scared about rejection

      • 011_Eleven

        401d

        @Lizzieb22 I get utis constantly. I've had sepsis from one and they hurt worse every time. It sucks

      • cobbo93

        430d

        @Lizzieb22 I had a uti once that led to sepsis jus make sure to drink plenty of water and if any sepsis symptoms show go straight to emergency room.

        • Lizzieb22

          430d

          @cobbo93 what were your sepsis symptoms? Luckily treated uti

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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