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Gumbysam

643d

My symptoms all rapidly got worse within the last year and I feel like I am really struggling with grieving for the person I used to be - anyone who identifies with this - any suggestions?

Top reply
    • Pixxy

      641d

      I totally understand! I am expecting 19 year old and I get 90 year old out of my body.

    • Pixxy

      641d

      I totally understand! I am expecting 19 year old and I get 90 year old out of my body.

    • turtlellz

      641d

      My symptoms all randomly started last summer (2021) and I also just moved to a new state where I only knew one person. I’ve been trying everything possible. I’ve tried PT, OT, massage therapy, lab work, and lots of meds. I definitely am not doing normal 23 year old things and it’s hard to accept, but I can’t push myself and risk hurting myself and I’m finally understanding that and my friends are too. Just listen to your body and don’t push yourself. I’ve been in so much pain the past year, and winter was absolutely brutal and I couldn’t do anything. But I got a work from home job which allows me to rest when needed. Best of luck!

    • isla

      642d

      Yes 100% It sometimes feels like my brain and body are in disagreement. Difficult when mentally I crave activities that gave me energy in the past but now cause harm to my body. Not sure if I have any advice - but I'm trying to find new ways to do things I used to enjoy. So instead of going on a long uphill hike, going to flat short path. Bittersweet but sometimes helps

    • Tabbykatsy

      643d

      I can relate - although my dislocations aren't as much of an issue, the other underlying health dysfunctions have become more burdensome. My mom specifically thinks I've been a hypochroniac my whole life, and as more diagnosises are made she just hasn't acknowledged the truth or supported me completely. Its hard when others can't relate, or understand what we deal with.

    • SylviaIris13

      643d

      I don't have suggestions but I heavily relate. I went from working in a grocery store to never being able to go in due to walking to much. (Between eds and pots) I guess I try not to dwell on the things that I can't do and I try to find new things but it's really frustrating

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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