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Kyn

810d

Should I see a different doctor? I haven't officially been diagnosed with endo however my doctor is pretty sure it's what I have. I have all the symptoms and my pain affects my life daily. I've seen my doctor for well over a year now and I feel at a loss. She has said that there is nothing she can do to help me at all. How should I go about this?

Top reply
    • Stray_Socks

      803d

      I think you should. I had a NP tell me everything was fine, that I had pelvic inflammatory disease, and then she prescribed me birth control that has its hormones change every week. The most recent gynecologist i went to listened to my symptoms and the longevity of them. She is almost entirely sure I have endo and suggested that I book a laparoscopy. She told me that they treat it the same whether they have an official diagnosis or not, get someone who will listen.

    • Stray_Socks

      803d

      I think you should. I had a NP tell me everything was fine, that I had pelvic inflammatory disease, and then she prescribed me birth control that has its hormones change every week. The most recent gynecologist i went to listened to my symptoms and the longevity of them. She is almost entirely sure I have endo and suggested that I book a laparoscopy. She told me that they treat it the same whether they have an official diagnosis or not, get someone who will listen.

    • LivMalavazos

      804d

      If you are wanting further help, I think you should find a doctor who is willing to do excision surgery. There are also so many other treatments like injections and suppositories and PT, and you deserve all of that! It doesn’t seem like this doctor is offering the best.

    • YogaUnicorn

      808d

      Find a new doctor either one that will help manage symptoms without hormonal medicine or an excision specialist

    • Mrs.Rainbow6

      810d

      Oh and there's the depo shot to stop your period but you might still bleed because of the endometriosis but they use it to help manage it so your period is at least not as heavy

      • Snowy

        809d

        @Mrs.Rainbow6 , @DocGabe, and @Kyn, there are MANY options for stopping periods. I've been one upwards of 7 different oral contraceptives ("the pill") and Xulane ("the Patch"). Xulane was a bad time for me. I bled for nearly 3 months straight. 0/10, do not recommend. At least, it didn't work well for me, I'm sure there are others it worked just fine for. I've also heard of a hormonal IUD being used to treat endo, but idk abt that one. I've been on the fence about trying it for over a year and recently decided (based on testimonies from this app!) that it isn't worth it. Most ppl with endo who've tried it said they had worsened bleeding and pain! Doesn't sound too effective to me, but again, everyone is different. If your doctor is giving up without trying anything, I think it's time to see a new doctor. If this was just a GP, I would look for a gynecologist instead. They will be more versed in how to help. Better yet, you can seek out an endo specialist. But, you may need a referral from a gyno anyway, so that's a good place to start.

      • DocGabe

        809d

        @Mrs.Rainbow6 (I worked in OB/GYN clinic a few years ago) quick bit here, just be careful with the Depo-Provera shot, it's the only BC shot that's proven to cause significant weight gain, and if you want to use it on the side as BC, it rarely works as BC. We got 2-3 new pregnancy patients a month who were on depo. I use Nuva-ring as much as it sounds weird, it's actually a very soft ring and unlike IUDs or sib-dermal inserts, if something bad happens, you can take it out immediately. It specifically prevents periods. For endo patients you take it for three months straight (no breaks), then have one dulled down period every three months. Make sure you take calcium and D3 while on it, progesterone tends to strip your body of it.

        • Kyn

          809d

          @DocGabe could you tell me a little more about the nuva-ring if you don't mind?

    • Mrs.Rainbow6

      810d

      I think it might depend on what you want and what you're comfortable with. Options I'm aware of are pain meds, muscles relaxers, Orilissa, laparoscopic ablation, and a hysterectomy. The last one is the only permanent solution and you're going to have to let them know what you want but if you want surgery, you'll need to be firm in your decision and tell them why.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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