See Alike in...

Alike App

Browser

Tizzylemon

505d

I'm new. I'm not sure how this works but I've been struggling to get my life on track. I'm struggling finding the right people to talk to that can help me. I know I need to get a good exercise routine or even just a day to day routine. But some days I'm in so much pain, stuck running to the loo or just so unmotivated to do anything. I can't say I will do this activity on this day at this time because I can't rely on my body, I am a wheelchair user for long walks and walker or walking stick userfor short distances. I feel very alone. My doctors don't understand EDS and I feel very unsupported because of that. I have amazing family and friends who do what they can to help but I'm not getting anywhere. I just turned 30 me and my husband want to start a family soon but it just feels so out of reach. I would really like to talk to someone who is or has been made quite disabled by EDS. What can I do?

    • Alfubet

      504d

      For me personally I found physical therapy to be very helpful in this regard. I was using a wheelchair often. I started with once a week, he would give me easy strength building exercises and supervise to make sure I was doing right and that it wouldn’t hurt. I’m now up to every 3 weeks and feel more confident doing exercises without supervision. Most of the exercises I do are with resistance bands or isometrics. Feel free to message me if you ever need someone to talk to.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion