Struggling with Chronic Illness: Seeking Advice

So I am new to this. I have had a pots and eds diagnosis since 2012. Recently both have been getting progressively worse. I am turning 25 next month and I feel as if I am not able to be as active as I used to be. This summer I had to start getting bi weekly infusions for my pots which had been controlled by diet and exercise up until this point. My EDS is making it so it is hard for me to walk long distances. My hip starts having excruciating pain if I walk to long. This is really hard on me because I love hiking and being out in nature. It has also come to the point where I no longer am able to pursue the jobs that I want because I am not physically able to do them. If anyone has any advice or guidance I would greatly appreciate it.