See Alike in...

Alike App

Browser

sharkattack101

819d

I was diagnosed with Celiac Disease this summer and have been gluten free. However, I was diagnosed by blood test. I had all the symptoms and they immediately went away when I quit gluten. I used to be sick all day: excessive bathroom visits, horrible cramps, nausea, throwing up, fever, rash and a general feeling of being unwell. I’ve been on the list to meet with a GI for 6 months now and I can’t imagine eating gluten again just to get a proper diagnosis. Has anyone been in this spot? And what would you do/what did you do in this situation?

Top reply
    • Lolita

      817d

      Hey there! I’ve dealt with the same thing. I found it absurd to feel worse on purpose in order to get a proper diagnosis. Later I knew that by being checked for a specific gene, colonoscopy may be spared

    • Lolita

      817d

      Hey there! I’ve dealt with the same thing. I found it absurd to feel worse on purpose in order to get a proper diagnosis. Later I knew that by being checked for a specific gene, colonoscopy may be spared

    • EveSunset

      819d

      I’m glad! I want to stress though that it’s different for everyone and it might take more time for you to recover a little more. Just be very cautious about it and don’t try eating a lot at a time. Start with literally a bite or a couple bites. 🤗

    • sharkattack101

      819d

      @evesunset I really appreciate your response to this. It gives me a lot of faith that if I do have to try to eat gluten that I can make it through it. I can’t express how anxious I’ve been about this because I don’t know anyone else with Celiac.

    • EveSunset

      819d

      Hello! After half a year once you eat gluten again it might not be as bad. Maybe everything has mostly healed and you won’t get bad reaction. So I would try very cautiously if you really have to. That’s how it was for me. I used to have terrible symptoms and very high fever but now after a year of gluten free diet I can occasionally eat a bit of something with gluten in it with no reaction (I understand that it’s not good for me and I shouldn’t do it though). Otherwise not getting a proper diagnosis might not be as important, if you feel way better on gluten free diet and don’t want to get back to eating gluten anyway.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion