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Wanderinglumos's Post
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Wanderinglumos

1y ago

Struggling to Stay Hydrated with POTS

Hello potsies. Does anyone else get uncomfortable drinking fluids. It’s genuinely been so so hard for me to get hydrated bc I get so full and bloated from drinking just a 30oz water bottle of water (sometimes even less). Doesn’t matter if I’ve had salt or not the bloating just comes. But it’s been so bad that if I drink water I won’t be hungry later so I’ll just uncomfortably force myself to eat something bc i have to eventually. I mentioned it to my doctor and she said “don’t eat and drink at the same time” which I don’t love as an answer. Even if I don’t at the same time I’ll still be so full of water that I am just constantly uncomfortable. To be clear: this isn’t pain it’s just a fullness/pressure that becomes so annoying that I don’t drink. Which obviously isn’t good for pots. I just really want some relief bc I know I’m dehydrated and flaring my pots.

Your answer

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55isMe

10mo ago

Google "infusions hydration near me" they are available now in areas in US. Counted as SPA treatment vs medical treatment. Price??
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bonnell2

10mo ago

Drinking water can be very hard on us, especially. The thing to do with the people who think we are " faking it".... Hit them with this info. It usually shuts them up. Ok. Hydrogen is a toxin to our systems. It is allowed only to accept so much. Now bile, and peptic fluids have a lot of (hydrogen, and when we start producing extra fluids, it makes us nacious or start vomiting in order to expell the toxic hydrogen. The more water you drink, the more ✋hydrogen you add. So, THAT is why we DON'T drink water to settle our tummies. Does that make sense? I found that out when my first GI desided to limit any
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kateafranklin

1y ago

definitely tough as someone with Gastroparesis, which is common alongside of POTS (which I also have!)
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StressBear

1y ago

I have found that drinking through a straw helps me, be mindful of not drinking so much at one time and taking sips. Also if water is not your thing herbal tea is just as hydrating, I add Bouy flavorless hydration drops.
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Hamie

1y ago

No, but may try
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linklink

1y ago

About the not vomiting! a lot of gastroparesis patients don't throw up regularly, it's actually about 50/50 from what I know! please look into it bc this sounds like what I deal with and I have it! for a tip on drinking water my tips are to constantly kinda just drink a mouthful every maybe 20 min, as much water filled food as possible like fruit, and water everything down a ton, liquidy soup, oatmeal, tea, etc and find a drink you really like and can stomach (for me usually soda) and sip one after the other so water soda water
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Bird1620

1y ago

Yes!! Not only does it feel uncomfortable, but I have a bladder problem (not sure what) so anything I drink goes right through me and I constantly have to pee. Infusions have been a lifesaver for me
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EDSdancer

1y ago

how do you get infusions? I’ve always thought that would help me
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Wanderinglumos

1y ago

I was only cleared for infusion once a month for three months. It helped for a few days each time and i wish i could’ve gotten them more frequently. But I also hated the appointments bc they had to stick me so many times to get the iv in. Even got sent home before bc three nurses couldn’t get it.
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Beetlejuul

1y ago

Water goes through me so fast doesn’t matter how much salt I’ve had I don’t retain it so like I’ve given up
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Teal100

1y ago

I get this because of my gastroparesis, water is actually harder for me to tolerate than other liquids like juice.
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Wednesday_7

1y ago

Yeah, water makes me feel sick, so I have a really hard time drinking water. It sucks because people don’t take me seriously since they think I’m intentionally just not “committing to getting better”.
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Wanderinglumos

1y ago

that’s my problem too. I am not getting enough but it’s so hard to drink so much. If I drink enough I can’t eat enough too
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EDSdancer

1y ago

Yes omg drinking water makes me so nauseous and I honestly wish I could just get daily iv fluids or something because I know I need to hydrate but it’s so hard to do it when I know it’s gonna ruin my whole day
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kateafranklin

1y ago

Definitely. I have Gastroparesis and I get uncomfortable - but I do also get pain. Many people do just get the pressure/bloat though. Please advocate for yourself. Remember, your doctors work for you. You don’t work for them. If you feel you need a test to rule out a condition, then ask. If they say no, tell them to put why they said no in your chart… and most of the time they will say yes. You know your body best!
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Wanderinglumos

1y ago

thank you, I needed that 🫶🏼
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catmom1995

1y ago

yes so hard
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SmileySnail

1y ago

I never drink a whole water bottle at a time. I have a liter water bottle that I drink throughout the day, but I take small sips, never more than a few swallows at a time. I liked it when I used to have a camelbak water bottle because I would chew on the straw bit and I'd also end up absent mindedly drinking the water too. Big swallows and drinking all at once like "playing catch up" is definitely uncomfortable. I agree with what everyone else said. Small sips also helps with my acid reflux and nausea, too
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Wanderinglumos

1y ago

thank you. I guess I really need to be more conscious of drinking throughout the day and not “catching up.”
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inspainwithoutthes

1y ago

I totally get that! Drinking really cold water/drinks seems to help that feeling delay for me. Slushees are like 🙌🏻 I definitely recommend to try it
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chronicallyfab

1y ago

Yes I second the mention of gastroparesis! The biggest thing to keep in mind with gastroparesis is that your stomach moves slowly. So drinking room temperature liquids rather than cold can help and drinking small sips over an extended period of time can help you digest and absorb more as opposed to taking big gulps. Small lifestyle changes can make a huge difference!
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kateafranklin

1y ago

I second this!
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Wanderinglumos

1y ago

thanks for the tips! I tend to take big gulps at a time which definitely doesn’t help. I have to try and take smaller sips
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MissLucy_101719

1y ago

Lmnt is good too as it makes less liquid go farther. You could also go for salt tablets such as vitassium or salt stick
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Wanderinglumos

1y ago

I have tried a couple flavors but it unfortunately upset my stomach quite a bit 😕 I appreciate you for the suggestion!
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rylesmcgyles

1y ago

yes! i’m always been told to increase my water intake but even so much as a cup of water sometimes leaves me bloated and nauseated. liquid IV has been a lifesaver in that aspect, i recommend trying that if you haven’t already!
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Wanderinglumos

1y ago

exactly. I drink a cup and I feel full. I have liquid iv that I should drink more often than I do. Perhaps I’ll give it another shot and focus on smaller sips throughout the day too
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Asteroidrose

1y ago

yesss it is so hard. ❤️❤️
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Annayenney

1y ago

Have you looks into gastroparesis? It can cause a ton of bloating and a full feeling.
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Wanderinglumos

1y ago

thanks for the response, it has me looking into it more
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Wanderinglumos

1y ago

I have looked into it a little bit and have plenty of the symptoms aside from vomiting. I was hoping my pots doctor may refer me or talk to me about it more but she wrote it off pretty quickly. I guess I could try talking to my pcp about it

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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