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I have POTS and hEDS and it seems like it’s hard for people around me to understand what that feels like. My friends and family expect me to normal and be able to do all of the things they can. I try to educate them on my conditions but they still don’t seem to understand I can’t be “normal”. I’m not sure how else to explain that I’m in excruciating pain all of the time but I’ve gotten really good at hiding it so you wouldn’t even know. Whenever I have a flare up they think it’s just a bad day and I’ll be back to normal tomorrow. They don’t seem to understand that what they’re doing is ableism and that really frustrates me. Anyone have any tips on how to help my family and friends better understand what I go through and the things they can do to help me?
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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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