Struggling to Lose Weight with Idiopathic Hypersomnia

I am in same position only difference is our illnesses I canr shift it and night get more and more depressed xx

I'm similar I can't move much n I have no appetite. After trying to loose it since June.monday I start semaglutide saxenda injections

Hi what helped me lose weight is doing the 20/80 diet where you eat 80% healthy foods and 20% anything you want. Remember to eat with balance; not too much healthy food or too much unhealthy food. Try googling some yummy healthy recipes sometime and try them out.

I feel for you. That's really hard. The last thing you need is to feel upset with yourself, you're already too exhausted for that! Lol. Remember, this is not a battle of your will power, it's probably miscommunication in your internal system and you should never feel guilty or disgusted by that (even though I understand where you're coming from.) I have a couple things that I'm curious about. Have you ever had your thyroid tested? When my fatigue was so extreme I couldn't walk up the staircase inside my own apartment it turned out my thyroid wasn't functioning correctly. Just remember, whatever you're going through, it's just a challenge you're currently facing, not who you are as a person. You're fighting a hard battle. The other thing that comes to mind, because I too have to yell at myself to move (sometimes internally, sometimes outloud) is that your neurotransmitters may not be communicating the signals in your brain correctly into your system. I googled something called the braverman test which, because neurotransmitters are so hard to test, is a free online true/false test that will give you some feedback on what might be happening in your brain that can be causing some of your struggles. It's very simple to complete and provides good, detailed feedback based on your answers. My body struggles to produce dopamine which makes it difficult for me to move on some days and causes twitches and other side effects as well. Maybe this test can give you some answers so that you won't be so hard on yourself during the challenging journey you're on. Sending you love and understanding, thanks for sharing openly and honestly 🤗

I reached out to my Dr and she suggested talking with a dietitian because they will take your lifestyle AND mental health into account, not just what you eat.

Sleep test too

Ask for modafinil. I'm not on it but your describing exactly what it's used for.

Weight loss in a healthy way is different for everyone. I'm happy to chat about your eating habits and ways to fit a tiny bit more activity into your day. DM me.