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ThatSickKid

983d

I haven't been able to keep food down in months. My weight is rapidly falling, but my doctor doesn't believe I need a feeding tube. I have lost 50lbs. I feel like i'm not being listened to.

Top reply
    • bouncydumpling

      512d

      @Butterfly We need to stop seeing life improving devices and interventions as extreme. The suffering and trying to aimlessly shoot in the dark when there's a solution instead is what's extreme.

    • wreckedwill2017

      961d

      Been there done that. Was on not even IV with dextrose (not diabetic) when inpatient due to complications from gastroparesis. I learned to be careful how I described things. Never claim pain more than ten, no drama. Those automatically make healthcare professionals dismiss you as pain med seeking even though I can’t take pain meds most of the time. I have hsd (being tested for hEDS now) and have sustained three ugly injuries, one while I was in the hospital - I refused pain meds due to what they do to my dtp (diagnosed with full digestive track paralysis this year - gastroparesis found four years ago) and it wasn’t until I told them no pain meds without my direct permission that they looked at me differently. Because of my frequent visits and hospitalizations (I live with a progressive, life threatening condition - panhypopituitarism induced secondary adrenal insufficiency) and that changed how they see me. Also, watch out to not show too much emotion. Things like that make doctors and other automatically dismiss people.

    • ThatSickKid

      978d

      i have tried. ive been on a liquid diet for months but still getting sick

    • Butterfly

      980d

      I'm sorry to hear how you're feeling, it's not supposed to be that way. It's scary to lose weight so fast, but a feeding tube is an extreme procedure. Have you tried to change your diet before that? Maybe try to blend your meals - fluids leave your stomach faster and are easier to digest than solids.

      • bouncydumpling

        512d

        @Butterfly We need to stop seeing life improving devices and interventions as extreme. The suffering and trying to aimlessly shoot in the dark when there's a solution instead is what's extreme.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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