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ThatSickKid

Updated 10mo ago

Struggling to Keep Food Down for Months

I haven't been able to keep food down in months. My weight is rapidly falling, but my doctor doesn't believe I need a feeding tube. I have lost 50lbs. I feel like i'm not being listened to.

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Butterfly

3y

I'm sorry to hear how you're feeling, it's not supposed to be that way. It's scary to lose weight so fast, but a feeding tube is an extreme procedure. Have you tried to change your diet before that? Maybe try to blend your meals - fluids leave your stomach faster and are easier to digest than solids.
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bouncydumpling

1y

We need to stop seeing life improving devices and interventions as extreme. The suffering and trying to aimlessly shoot in the dark when there's a solution instead is what's extreme.
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ThatSickKid

3y

i have tried. ive been on a liquid diet for months but still getting sick
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wreckedwill2017

2y

Been there done that. Was on not even IV with dextrose (not diabetic) when inpatient due to complications from gastroparesis. I learned to be careful how I described things. Never claim pain more than ten, no drama. Those automatically make healthcare professionals dismiss you as pain med seeking even though I can’t take pain meds most of the time. I have hsd (being tested for hEDS now) and have sustained three ugly injuries, one while I was in the hospital - I refused pain meds due to what they do to my dtp (diagnosed with full digestive track paralysis this year - gastroparesis found four years ago) and it wasn’t until I told them no pain meds without my direct permission that they looked at me differently. Because of my frequent visits and hospitalizations (I live with a progressive, life threatening condition - panhypopituitarism induced secondary adrenal insufficiency) and that changed how they see me. Also, watch out to not show too much emotion. Things like that make doctors and other automatically dismiss people.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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