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Annayenney

752d

Any advice on exercise? I’ve really been struggling lately to get started. I used to be extremely athletic, but as my symptoms have worsened, exercise has been harder. When I try, my heart rate exceeds 200 and I occasionally pass out.

Top reply
    • Nymphettepeach

      751d

      Hi! I am the same way where I will go on a short walk and end up totally disregulated- I used to be extremely athletic as well! I used to work out for an 1 1/2 and high intensity, so I extremely relate to your issue!! The only thing I have found that is even close to working out regularly is swimming! It keeps my heart rate lower while working out my whole body. Lifting weights while sitting can still arise some issues, but it can aid in instances where you want to target a specific area. I would recommend any workouts that are within a laying position! But swimming is the one that I felt the most active, especially as someone who wants to maintain weight homeostasis, and is fulfilling emotionally.

    • Nymphettepeach

      751d

      Hi! I am the same way where I will go on a short walk and end up totally disregulated- I used to be extremely athletic as well! I used to work out for an 1 1/2 and high intensity, so I extremely relate to your issue!! The only thing I have found that is even close to working out regularly is swimming! It keeps my heart rate lower while working out my whole body. Lifting weights while sitting can still arise some issues, but it can aid in instances where you want to target a specific area. I would recommend any workouts that are within a laying position! But swimming is the one that I felt the most active, especially as someone who wants to maintain weight homeostasis, and is fulfilling emotionally.

    • Rei0Noctem

      751d

      Try looking up the CHOP protocol! It's designed for POTS patients and has a 80% success rate of either remission or something close to it.

    • lexiekathleen

      752d

      I do a slow walk on the treadmill!

    • DysUnicorn

      752d

      Muldowney protocol and seated exercises like weighted curls, shoulder press, leg extension, etc

    • incogneato

      752d

      I agree with the non-upright exercise. I do floor exercises and mild walking when I can

    • Belugabear

      752d

      Lifting weights in bed helped me a lot! I can do it while working on some tbh info else and it doesn’t require standing

    • RainyDayFiddlehead

      752d

      I like swimming especially because it keeps me from getting too hot

    • RainyDayFiddlehead

      752d

      Maybe you've heard this already, but biggest tip is exercise that doesn't require you to be upright. Recumbent bike, swimming, yoga/bodyweight exercise as long as they're done on the floor (so no yoga flows that involve a lot of getting up and down over and over again)... Those are all good for me

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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