Stomach Pain and Bloating with EDS and POTS

Wanderinglumos

255d

Stomach issues from EDS and/or POTS. I posted a while back about how I don’t eat or drink a lot bc of the bloating and fullness I get. This week I’ve started having pain, like a dull soreness (on my left side mostly) when I feel bloated/full. I’ve also been struggling with constipation and just overall feeling like I have no room in my stomach. Years ago I had pain and went to the ER who told me it was related to constipation. This feels a bit similar. But I’m curious if this is something others have had. I get nauseous but don’t throw up and I still make myself eat enough to be okay. It’s just uncomfortable I mostly snack a lot. Some suggested gastroparesis on my last post and it seems like I could check off a lot of those boxes. It seems to flare up like this but it’s not always this bad. Just looking to see if others experience this.

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14

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Constipation

Abdominal Distention

Ehlers-Danlos Syndrome (EDS)

Gastroparesis

Postural Orthostatic Tachycardia Syndrome (POTS)

Cromoglicic Acid

Chronic Abdominal Distention

Lethargy

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    • Ballet_Bot23

      255d

      Hey I'm going through something similar. Sending hugs ❤️

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    • ZebracornV

      255d

      This is almost identical to what I’ve struggled with. Could be gastroparesis, but also could be MCAS. Have you been diagnosed with mast cell?

      1

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      • Wanderinglumos

        255d

        @ZebracornV thanks for your response. I have not been diagnosed with MCAS. Neither Mcas or gastroparesis have been mentioned at my dr appointments either. I’m still new to all this and figuring it out. I honestly don’t know much about mcas aside from it being common with pots and eds. I’ll look into it. Thanks.

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        • ZebracornV

          253d

          @Wanderinglumos I asked about MCAS bc after trying different things I have recently started oral cromolyn sodium. Not only has it helped the MCAS symptoms that we were trying it for, but it also seemed to help A LOT with my gastrointestinal symptoms, in particular my bloating (which for me can cause me to change up to 2 clothing sizes when it’s at its worst!).

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        • ZebracornV

          253d

          @Wanderinglumos also, smaller meals / snacking is super helpful for a lot of us with POTS anyway, bc less blood rushes to the abdomen for digestion which can cause extreme fatigue and drop in bp. (At least that’s how I understood it when it was explained to me)

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    • Trulyloved

      255d

      I’ve actually experienced the same things. It’s on my left side too. I’ve seen a gastrointestinal specialist, had 2 procedures done to figure out causation w/ no resolve. Wishing you the best & that they figure something out for you. If they do, pls share!

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      • Wanderinglumos

        255d

        @Trulyloved thank you! I will be mentioning it to my doctor at my next appointment. I’ll let you know if I figure anything out.

        1

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    • Arin922

      254d

      I get like this every once in a while as well. I was in a pain rehab clinic at mayo where they told us that smaller meals and snacking throughout the day can help. This might help if you are feeling full all the time

      1

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    • SlothFan26

      254d

      I get this too. Could be GP, intestinal dysmotility, or could be other things like endometriosis, MCAS like some mentioned, or even vascular compressions

      1

      Reply
    • kateafranklin

      254d

      I would definitely check out the Gastroparesis diagnostic criteria and pursue it. Sounds like you!

      1

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      • Wanderinglumos

        250d

        @kateafranklin thank you, I will!

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    • Teal100

      253d

      I have gastroparesis and intestinal dismotility. Which causes a lot of issues like that.

      1

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      • Wanderinglumos

        250d

        @Teal100 thanks! I’ll look into it

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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