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Greeen

47d

Hi everyone ! I'm 67 and just got diagnosed with multiple myeloma. I'm trying to decide if I should go for a stem cell transplant or not. My doctor says there are some new treatments out there, but I'm not sure. If anyone's been in the same boat, can you share your experience with or without a stem cell transplant? Thanks!

Top reply
    • Michele.PatientPower

      12d

      @AshleyZouma @AshleyZouma Please keep us posted on how you make out with your PET scan.

    • AshleyZouma

      47d

      I'm really sorry to hear about your diagnosis. It must be tough going through something like this. I can imagine how you must be feeling right now. It's good to know that you have a positive outlook I was diagnosed last year at 71! it has been 9 months since stem cell. I am on revlimid maintenance plan. No reaction in my hands and feet as some people experience . I have only been on it for 2 months, but took a higher dose prior to the transplant. My biggest struggle is the impact on my platelets, but the medical team is monitoring them and unless they get below 30,000 then I will stay on it. My biggest issue is still the pain in my lower back which may be due to the MM destroying my bones. Waiting for a PET scan to insure the it hasn’t come back, but hopefully the pain is not due to that. I’d go with the maintenance plan and hopefully you have a good medical team for support! sending you strong hugs and strength!

      • Michele.PatientPower

        12d

        @AshleyZouma @AshleyZouma Please keep us posted on how you make out with your PET scan.

    • Lizzyskloset

      47d

      Hi ✋I did SCT in June of 2023, never felt better but… it was tough for a bit but you do come out of it ! 🤗

      • Michele.PatientPower

        12d

        @Lizzyskloset @Lizzyskloset How are you doing now that you are nearly a year out from your SCT? and how are your numbers?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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One person shared their experience stating, "Diagnosed with multiple myeloma in March, I've completed my treatment and stem cell transplant 3 months ago. i couldn't eat anything for a month but I'm starting to feel better." Another person mentioned, "Diagnosed in 2017, had a stem cell transplant in March 2016. I have come out of remission 2x since the transplant. Thanks to a great team of specialists I'm still fighting." However, one individual expressed concern about stem cell transplants as they stated, "I’m wary of transplant. My mom had 2 and she’s dead."

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