Starting Seizure Medication: Need Advice and Encouragement

Oliverita

715d

So… I’m about to start my new seizure medication. I’ve never taken medication for it before and I’m really, REALLY scared. Does anyone have any info on what I can expect? Or maybe just some encouragement because I’m really nervous about this :(

Lacosamide

Localization-related epilepsy and epileptic syndromes with complex partial seizures

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Momx3

675d

What seizure medicine are you taking? I have been on quite a few that didn’t work.

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- Oliverita
  
  673d
  
  @Momx3 I was on levETIRAcetam which was SO bad but now I’m on lacosamide and today is my first day taking two pills instead of one and I’m nervous because the first medicine was fine when it was only one but when I went to two is when it got really bad :(
  
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  - Momx3
    
    673d
    
    @Oliverita I take Vimpat and from what I understand is the same as lacosamide. It works pretty well for me but I take two others with it and am still having some seizures. They aren’t as bad as they were so we are continuing to look for another ‘add on’. Apparently, I’m a weirdo that medication isn’t stopping mine. 😔
    
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mia_thermopolis

713d

i totally understand your concern. seizure meds can be gnarly, and the side effects can be horrible. i just switched meds a few months ago and really put it off because i was so nervous. HOWEVER, in the end i’m feeling far better than i did before. i guess my best advice is that it often takes some time to find the medication that works best for your body. so don’t be discouraged if the first one doesn’t work out. and also remember that whatever you’re going through, you’re not alone 🤍

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- Oliverita
  
  711d
  
  @mia_thermopolis thank you for all the kind words :) it’s been 4 days and so far it’s been absolutely brutal, they mentioned suicidal thoughts could be a side effect but I was never expecting it to be this bad. Not to mention I feel like I have a rubber band around my head 24/7 lmao. Ugh it’s been hard for a few hours today I felt fine and I’m really grateful. Just trying to remember that these things take time lmao
  
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Starting Seizure Medication: Need Advice and Encouragement

Oliverita

Momx3

Oliverita

Momx3

mia_thermopolis

Oliverita

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Starting Seizure Medication: Need Advice and Encouragement

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