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Damber

460d

I need serious help. or tips. I've been having staring spells. my primary doctor says it's migraines nd has me seeing a neurologist in a few months. but I don't believe there migraines because I don't have a headache when the staring spells happen. I have eye pain from my eyes rolling back nd looking up at lights nd the ceiling constantly when it happens. my doctor believes me thank God. but I jus don't think these are migraines at all. I've had a CT scan done nothing came back but Sinus problems. I jus miserable. these happen at least 4 times a week too. only thing that helps is staying in a very dark room.

    • Floof96

      460d

      There are different types of migraines. It could be a “silent migraine”, which is where you have the other symptoms of a migraine, but no head pain. I seriously recommend going to a neurologist. A neurologist isn’t for only migraines, they treat so many different things.

      • Damber

        446d

        @Floof96 I had no idea silent migraines were a thing. I have a neurologist appointment in May.

        • Floof96

          446d

          @Damber migraines will not show up on a ct or mri. It’s a last resort diagnoses for when they cannot explain your head pain. But with migraines you don’t have your eyes roll in the back of your head. You could be having a small sort of seizure. Seizures can look very different for everyone. Please ask them about seizures as well

    • Macks

      460d

      I’m so sorry you’re dealing with this. If it helps to know, migraines don’t always necessarily have head pain; I get migraines without head pain too, and that was actually part of what made them take so long to figure out what was happening. But you could also ask for a referral to a different neurologist for a second opinion too!

      • Damber

        446d

        @Macks I haven't Even seen a neurologist yet. I can't get in until may unfortunately. 😩 but I do have an appointment scheduled.

        • Macks

          446d

          @Damber ugh I dealt with the long wait too 😞 it’s the worst. You could ask your primary care doctor about trying a CGRP blocker medication maybe? Those tend to have fewer side effects than most migraine medicines so they might be open to it? I’m so sorry you’re dealing with this and having to wait so long.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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One user experienced similar symptoms and found relief by seeing a neurologist and getting a proper diagnosis. It's important to discuss your concerns with your doctor and the neurologist during your upcoming appointment, as they will be able to provide more accurate information and potential treatment options based on your specific situation.

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