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Rebecca2022

802d

how do you handle being in a social setting with the NF

Top reply
    • Bobear

      781d

      I’ve had a few people notice especially when I was a cashier, it’s been hard because I moved to Florida and dressing for warm weather is hard.I have the skin tumors on my chest. The people that noticed it most is kids, but to be honest they are really sweet about it and then we become best friends and it gives me a little confidence about knowing the next generation doesn’t judge as bad as I thought.

    • Bobear

      781d

      I’ve had a few people notice especially when I was a cashier, it’s been hard because I moved to Florida and dressing for warm weather is hard.I have the skin tumors on my chest. The people that noticed it most is kids, but to be honest they are really sweet about it and then we become best friends and it gives me a little confidence about knowing the next generation doesn’t judge as bad as I thought.

    • bumpygirl567

      782d

      ps my name is Rebecca too ❤️

    • bumpygirl567

      782d

      I’m lucky enough that you can’t really tell from the outside, most of my tumors live under my clothes, but socially I feel like it’s made me anxious and awkward, and I struggle with wanting to date or be intimate because of having to explain all the bumps on my back and stomach, so I avoid dating apps or putting myself out there

    • Pistachio

      802d

      For me I never realized that so many people didn’t realize or notice it. Growing up I figured everyone knew and since I went to a smaller school I figured at least my grade knew. When I got to college it dawned on me that most people would never know unless I told them and it was both a good and bad thing. People never treated me differently, but then when there were things in life that were affected by my NF, it would’ve been nice if they knew so they could understand. Not sure if that helps, but for me unless someone asks about some of my physical signs, I don’t feel the need to tell them.

    • Rebecca2022

      802d

      Your lucky about that. I am extremely self conscious about it. I have some on my face and the rest are all over my body.

    • autumnalmonk

      802d

      Most people don't mention anything

    • Rebecca2022

      802d

      I am more asking about how other people react

    • autumnalmonk

      802d

      I'm okay with it... Depends on what you what you mean I suppose. Most people don't notice anything. Even though I have some pretty major scarring from surgery. And some tumors in my right eyelid area..

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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