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Nannybelle

714d

My most recent MRI showed a small 1.7 cm solid neoplasm on the bottom of my right kidney. Went to see an Urologist. Said that it was 80% chance malignant and 20% benign. Told me I had 3 choices: watch, wait and keep check with CT scans, do an ablasion where they burn or freeze, and have robotic surgery where the surgeon only removes the tumor. Has anyone else been through this? I need some input. Thanks

Top reply
    • Nannybelle

      372d

      Well I finally had it biopsied and it shows that I have Papillary renal cell carcinoma, grade 1.

    • Nannybelle

      372d

      Well I finally had it biopsied and it shows that I have Papillary renal cell carcinoma, grade 1.

    • T.T

      620d

      Yes I was tolded the same so it's a wait and see game for me

      • Cin

        500d

        @T.T you have a kidney issue?

      • Nannybelle

        521d

        @T.T how are you doing

    • Nannybelle

      686d

      👍thanks

    • Cin

      686d

      For an RCC oncologist at Chapel Hill N Carolina William Kim tell him Cindy the kidney cancer advocate sent you. 984-974-0000. Google them you will see how good they are. I don’t like any in Virginia so I only refer Drs I know are tops. Never ever stop scanning as RCC is a sneaky cancer. I am out 16 years. I still scan, and will for life. A surgeon does surgery a RCC oncologist will follow you forever. Please get one consult with Billy Kim he is a top guy. I’m sorry I just saw your reply. I’m on Facebook if you need anymore help Cindy Rosa Pelzar Kornreich

    • Nannybelle

      714d

      Thanks for your reply. I am 62. My urologist recommended the partial surgery but no hurry. I have an appointment in 2 months with the surgeon for a consultation. I also have a fatty liver so can't take Tylenol.

      • Cin

        714d

        @Nannybelle cut out sugar and carbs that fatty liver will be gone. Do you live in the states? If you tell me what state I can give you names of Doctors

        • Nannybelle

          714d

          @Cin I live in Virginia

    • Cin

      714d

      Yes. I had a 6.5 removed May 3rd 2006. I am a kidney cancer advocate. Your mass is very small. A bit too small to get a accurate biopsy. RCC grows about 1/2 an inch a year. I don’t know your age, if you are in your 20’s 30’s call NIH, they will be interested in your case. There are several subtypes of RCC, Clear cell being the most prominent. There are some features that can make it more aggressive. RCC has stages 1-4 and A grade, the grade determines how aggressive it is. Make sure the urologist/surgeon has done many Laparoscopies. That they are at a university hospital. I would wait till it is 3 cm and biopsy. If it is benign you won’t lose kidney function and retain your kidney. About 20% chance it is benign. If it turns out to be RCC do a partial nephrectomy. It is better than freezing or burning it off for the future. If it turns out to be RCC make sure you see an RCC oncologist for a consult and to follow you for life. RCC is very sneaky and you need to scan yearly. I still scan 16 years later. Don’t wait because doctors don’t like to take on old cases. Drink 2-3 liters of water from now on. No NSAIDS only Tylenol from now on. Motrin Advil are filtered through the kidney, not good. Tylenol is filtered through the liver. Make sure you sleep at least 8 hrs a night to keep your immune system strong. Walk about 20 minutes a day for 30 minutes. If you need help finding a urologist or RCC oncologist I can help you. I also have a list when you decide on surgery. I’m here if you ever need help. Cindy

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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