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Kat.Wilder's Post
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Kat.Wilder
2y ago
Living with Small Fiber Neuropathy: My Struggle for Understanding
I have been diagnosed with small fiber neuropathy (under various names) for twelve years, and I just do not understand. It has left me with countless other diagnoses, some lasting a month, some lasting the rest of my life. Even at conferences and on apps like this, people don’t seem to understand my struggles. I guess I would like to know if anyone understands or feels this way too?
Your answer
AJSSC
2y ago
😥yuppp! Just had another neurologist try to get me to give up searching for the cause of my SFN. But i will continue the search. Only took 13 years to get the SRN diagnosis..
Kay_93
2y ago
I definitely can relate. When I explain my symptoms to my Rheumatologist, he looks at me like I am insane. He nor some of my family cannot understand that having burning, stabbing pain sensations exist.
Sweetestthing0313
2y ago
Yes indeed!!! Sometimes it feels fine, and other times, it’s the most excruciating pain ever!!!!!
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