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Kat.Wilder

792d

I have been diagnosed with small fiber neuropathy (under various names) for twelve years, and I just do not understand. It has left me with countless other diagnoses, some lasting a month, some lasting the rest of my life. Even at conferences and on apps like this, people don’t seem to understand my struggles. I guess I would like to know if anyone understands or feels this way too?

Top reply
    • AJSSC

      760d

      😥yuppp! Just had another neurologist try to get me to give up searching for the cause of my SFN. But i will continue the search. Only took 13 years to get the SRN diagnosis..

    • AJSSC

      760d

      😥yuppp! Just had another neurologist try to get me to give up searching for the cause of my SFN. But i will continue the search. Only took 13 years to get the SRN diagnosis..

    • Kay_93

      791d

      I definitely can relate. When I explain my symptoms to my Rheumatologist, he looks at me like I am insane. He nor some of my family cannot understand that having burning, stabbing pain sensations exist.

    • Sweetestthing0313

      791d

      Yes indeed!!! Sometimes it feels fine, and other times, it’s the most excruciating pain ever!!!!!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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