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hazyeclipse

718d

does anyone else have small fiber neuropathy with dysautonomia/pots? if so, have you found the cause of your neuropathy?

Top reply
    • hazyeclipse

      714d

      @UnicornDream you developed pots from blood patches? Wow, I didn't even realize that could happen.. did you have a csf leak? My neurologist is suspecting it, or some sort intracranial pressure issue, and I'm worried that a lumbar puncture could make me worse if I have either low pressure or a leak. She told me blood patches are the treatment for leaks. And I have an almost constant, daily headache too. It really is painful to exist every day.

    • UnicornDream

      715d

      I do, POTS and SFN. I developed pots from 3 blood patches in my spine. I also suffer from New Daily Persistent Headache & Tarlov Cysts. It's so painful to exist everyday. Mine are all without explanation. 😥

      • hazyeclipse

        714d

        @UnicornDream you developed pots from blood patches? Wow, I didn't even realize that could happen.. did you have a csf leak? My neurologist is suspecting it, or some sort intracranial pressure issue, and I'm worried that a lumbar puncture could make me worse if I have either low pressure or a leak. She told me blood patches are the treatment for leaks. And I have an almost constant, daily headache too. It really is painful to exist every day.

    • hazyeclipse

      718d

      I have most of them too, but I don't have lesions on my MRIs so for now I assume I don't have it. Who knows though with this stuff sometimes

    • E11iefant

      718d

      Yes small fiber neuropathy and POTS, but I haven’t found the cause. I have every early MS symptom so I’m sure it has to do with that

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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