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771d
Anyone here been diagnosed with small fiber neuropathy?
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Generalized pain
Diabetic Neuropathy
Peripheral Neuropathy
Otalgia
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741d
@Reesa ugh, that's awful. I just got my results, and they found severe small fiber neuropathy in my legs. I'm only 20.. what gives? I can't believe I have the rest of my life for this to keep progressing. It's so nice to have the hard evidence though, so doctors can't blow me off in the same way anymore
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746d
Just got my biopsies
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749d
Ugh. I had a biopsy in 2017. My sfn was already advanced. No one listened when I cried about the pain. I thought I was going insane. They thought I was med seeking.
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@hazyeclipse truthfully, even though it often progresses, you will have good days again. And if you stay limber and active through physical therapy, you'll have a lot of them. The pain gets worse then better then bad then tolerable again and in this way, you can totally have a fulfilling life.
753d
I have it as well. Super painful. I had the punch biopsy.
762d
There's a book called"small nerves big problem" that was really helpful
Me! ✋ got the punch biopsy to diagnose
Yes! It took me a while to get diagnosed and people to listen, but it’s hard finding information about it.
I haven’t gotten a biopsy, but my neurologist said I definitely have it :)
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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