K8tlyn

445d

Anyone here been diagnosed with small fiber neuropathy?

Generalized pain

Diabetic Neuropathy

Peripheral Neuropathy

Otalgia

View all
  • E11iefant

    445d

    I haven’t gotten a biopsy, but my neurologist said I definitely have it :)

  • Nat.27

    444d

    Yes! It took me a while to get diagnosed and people to listen, but it’s hard finding information about it.

  • AJSSC

    436d

    Me! ✋ got the punch biopsy to diagnose

  • AJSSC

    436d

    There's a book called"small nerves big problem" that was really helpful

  • Peonies

    427d

    I have it as well. Super painful. I had the punch biopsy.

  • Reesa

    423d

    Ugh. I had a biopsy in 2017. My sfn was already advanced. No one listened when I cried about the pain. I thought I was going insane. They thought I was med seeking.

    • hazyeclipse

      415d

      ugh, that's awful. I just got my results, and they found severe small fiber neuropathy in my legs. I'm only 20.. what gives? I can't believe I have the rest of my life for this to keep progressing. It's so nice to have the hard evidence though, so doctors can't blow me off in the same way anymore

      • Reesa

        415d

        truthfully, even though it often progresses, you will have good days again. And if you stay limber and active through physical therapy, you'll have a lot of them. The pain gets worse then better then bad then tolerable again and in this way, you can totally have a fulfilling life.

  • Claireduke

    420d

    Just got my biopsies

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.