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K8tlyn

713d

Anyone here been diagnosed with small fiber neuropathy?

Top reply
    • hazyeclipse

      683d

      @Reesa ugh, that's awful. I just got my results, and they found severe small fiber neuropathy in my legs. I'm only 20.. what gives? I can't believe I have the rest of my life for this to keep progressing. It's so nice to have the hard evidence though, so doctors can't blow me off in the same way anymore

    • Claireduke

      688d

      Just got my biopsies

    • Reesa

      692d

      Ugh. I had a biopsy in 2017. My sfn was already advanced. No one listened when I cried about the pain. I thought I was going insane. They thought I was med seeking.

      • hazyeclipse

        683d

        @Reesa ugh, that's awful. I just got my results, and they found severe small fiber neuropathy in my legs. I'm only 20.. what gives? I can't believe I have the rest of my life for this to keep progressing. It's so nice to have the hard evidence though, so doctors can't blow me off in the same way anymore

        • Reesa

          683d

          @hazyeclipse truthfully, even though it often progresses, you will have good days again. And if you stay limber and active through physical therapy, you'll have a lot of them. The pain gets worse then better then bad then tolerable again and in this way, you can totally have a fulfilling life.

    • Peonies

      696d

      I have it as well. Super painful. I had the punch biopsy.

    • AJSSC

      704d

      There's a book called"small nerves big problem" that was really helpful

    • AJSSC

      704d

      Me! ✋ got the punch biopsy to diagnose

    • Nat.27

      713d

      Yes! It took me a while to get diagnosed and people to listen, but it’s hard finding information about it.

    • E11iefant

      713d

      I haven’t gotten a biopsy, but my neurologist said I definitely have it :)

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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