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Kaitikins

576d

How often do you all sleep? I can barely keep my eyes open. My boyfriend keeps getting mad at me for being so tired all the time. I try to explain to him that it's epilepsy and all my medicine, but he thinks that I'm trying to ignore him.

Top reply
    • Suggarbear

      576d

      Hi so do to struggle with sleep. I learned can only sleep an hour at a time. Wake urself up to advoid having sezuires in sleep . Maybe ur man not right person if getting mad at u for being tried and lazy. I live with my parents. But my boyfriend respects me and my sleep habitats and supports me. Find people who u can help support u. Best of Luck.

    • Kaitikins

      576d

      I go to one of the best Neurological facilities in Tennessee. I travel for 4hrs to see them. It's my medicine that makes me the most tired, and we keep trying to find the best combo. I've had brain surgery, and it didn't work. So, now, I'm just always tired, and nobody understands that. I've been with my boyfriend for almost 8 years, and he, like I said, just doesn't believe my exhaustion.

    • Suggarbear

      576d

      Hi so do to struggle with sleep. I learned can only sleep an hour at a time. Wake urself up to advoid having sezuires in sleep . Maybe ur man not right person if getting mad at u for being tried and lazy. I live with my parents. But my boyfriend respects me and my sleep habitats and supports me. Find people who u can help support u. Best of Luck.

    • Kaitikins

      576d

      He sees me have seizures all the time. He always stays up until about 2am. He doesn't drink caffeine. He just has a lot of energy somehow. He gets upset when I get off work at 6 and just want to take a shower and get into bed. He just gets pissed because he wants to screw around.

      • songSungblue30315

        576d

        @Kaitikins That sucks. I don't know how to address a boyfriend being a total jerk about something as I've never had a serious one, so I'll skip over that. If you still have seizures all the time, have you thought about talking to a different neurologist?

    • songSungblue30315

      576d

      Well, that's made me angry. I think it's not an awful idea to tell him to pull an all nighter and restrict his caffeine. It might help him feel what you experience, at least physically. Has he ever been around you when you've had a seizure? If not, have him watch videos of people having them. I'm fairly sure it's worth you being pretty tired to avoid that. Honestly, I am anxious when I get in bed because sometimes the world spins. So I don't sleep as much as I should, but I'm too worried about stressing out my family. I lie and say it's allergies if they notice me rubbing my eyes.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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