Managing SLE Symptoms During Pregnancy: Need Advice

Tbabe

527d

Hey everyone... just got diagnosed last year with SLE and its been a roller coaster for me in managing my symptoms. currently I'm pregnant and have gone through so many life threatening experiences. I'm so scared....i need advice from people who been through this situation.

1

12

12

Joint pain

Prednisone

Chronic Generalized pain

Hydroxychloroquine

Systemic Lupus Erythematosus (SLE)

Generalized pain

View all

advertisement

Top reply
    • Tbabe

      494d

      Wanna share some tipsšŸ˜„

      0

      Reply
      Chat
    • kab

      527d

      Iā€™m so sorry to hear this. My pregnancy was wild / dramatic (I had my daughter 9/2020) -hang in there!

      1

      Reply
    • EG

      527d

      With SLE, what are your symptoms?

      0

      Reply
      • annebell

        525d

        @EG joins pain always tired

        0

        Reply
    • annebell

      527d

      In the last 4 years I do not have any I used to to have joints pain a lot

      1

      Reply
      • Ivone

        525d

        @annebell what did you do so you donā€™t have more pain ? šŸ™

        0

        Reply
        • annebell

          525d

          @Ivone I just stop eating red meat and a little exercise and drinking lots of water

          1

          Reply
    • EG

      525d

      So no more symptoms for the past 4 years? How did you make them go away?

      0

      Reply
    • Riverstone

      522d

      Hi :) I was in remission for 1 1/2 years only when we started to try to conceive. Hydroxychloroquine never worked for me, I have been unmedicated since 2014, and was so during my pregnancy too (not saying you should be too). My baby was born at home, I had a low intervention unmedicated birth. It's possible ā¤ļø rest a lot if you can, drink a lot of fluids, and try meditation. Ask for help around the house (that's a hard one for me but it's necessary!)

      0

      Reply
      • Tbabe

        520d

        @Riverstone šŸ˜® i don't think u have lupus sis.... cos not being on meds tru out pregnancy???? WOW

        0

        Reply
        • Riverstone

          520d

          @Tbabe ?? Pretty sure I do, it's been confirmed by 4 specialist in 3 countries, by biopsies of the skin and blood test. I have basically all the symptoms right now. Before pregnancy I consulted a rheumatologist and an OBGYN who has cared for many SLE patients before. They have both given me the šŸ‘supporting my choices. I had an easy, complications-free pregnancy and birth. I have found that lifestyle changes help me a lot more then medications.

          2

          Reply
    • Tbabe

      494d

      Wanna share some tipsšŸ˜„

      0

      Reply

ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences

Write your question here...

Get answer
Thank you! Your submission has been received!

Related Questions

Find people who are
experiencing a similar
medical reality

join the community
100% Free
100%
Free
Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.
Ā© 2020-2023 Alike, Inc
About AlikeWisdomFAQEditorial TeamAll ConditionsAll PostsAll Communities
Your PrivacyStoriesCommunity GuidelinesTerms of UsePrivacy PolicyBlogContact Us

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion