Tbabe

527d

Hey everyone... just got diagnosed last year with SLE and its been a roller coaster for me in managing my symptoms. currently I'm pregnant and have gone through so many life threatening experiences. I'm so scared....i need advice from people who been through this situation.

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Top reply
    • Tbabe

      494d

      Wanna share some tips😥

    • kab

      527d

      I’m so sorry to hear this. My pregnancy was wild / dramatic (I had my daughter 9/2020) -hang in there!

    • EG

      527d

      With SLE, what are your symptoms?

      • annebell

        525d

        @EG joins pain always tired

    • annebell

      527d

      In the last 4 years I do not have any I used to to have joints pain a lot

      • Ivone

        525d

        @annebell what did you do so you don’t have more pain ? 🙏

        • annebell

          525d

          @Ivone I just stop eating red meat and a little exercise and drinking lots of water

    • EG

      525d

      So no more symptoms for the past 4 years? How did you make them go away?

    • Riverstone

      522d

      Hi :) I was in remission for 1 1/2 years only when we started to try to conceive. Hydroxychloroquine never worked for me, I have been unmedicated since 2014, and was so during my pregnancy too (not saying you should be too). My baby was born at home, I had a low intervention unmedicated birth. It's possible ❤️ rest a lot if you can, drink a lot of fluids, and try meditation. Ask for help around the house (that's a hard one for me but it's necessary!)

      • Tbabe

        520d

        @Riverstone 😮 i don't think u have lupus sis.... cos not being on meds tru out pregnancy???? WOW

        • Riverstone

          520d

          @Tbabe ?? Pretty sure I do, it's been confirmed by 4 specialist in 3 countries, by biopsies of the skin and blood test. I have basically all the symptoms right now. Before pregnancy I consulted a rheumatologist and an OBGYN who has cared for many SLE patients before. They have both given me the 👍supporting my choices. I had an easy, complications-free pregnancy and birth. I have found that lifestyle changes help me a lot more then medications.

    • Tbabe

      494d

      Wanna share some tips😥

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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