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LB

Updated 10mo ago

Looking for Sjorgens dryness treatments

New Sjorgens diagnosis here. Been trying to acclimate to pilocarpine. What treatments have you tried for dryness?

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SaxyGirl

2y

For my eyes currently Restasis. My eyes we so bad! I drink a lot of water and usually start the day with some type of drink with electrolytes. I have used Liquid IV / Propel drink mix. Then the rest of the water. I use a dry mouth rinse like oral b and I get the dry mouth gum. It is expensive so I don’t buy it often
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TiffanyAnne

2y

Pilocarpine worked for me. Otherwise, just over the counter mouth wetting drops, and Systane for dry eyes. Also my nose gets dry so I use a saline spray or netti pot for that.
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LB

2y

Were you able to eventually tolerate 4 pills a day for the pilocarpine?
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LiLc

2y

I really liked Xiidra for eye drops!
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FayeR

2y

How does the pilocarpine agree with the gut?
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LB

2y

I’m only up tp talking one pill twice a day so far, I was trying three half pills & was feeling woozy so cut back but it might just take time to get past it 🤷🏻‍♀️
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TiffanyAnne

2y

I personally had zero issues with the pilocarpine.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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