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Flightless_Wings

725d

Hello! I’m new to this and looking for people with common diagnoses’s. I think my current biggest mystery is I had WPW and have had 2 ablations but still have activity induced SVT. I just had another failed ablation because they couldn’t induce the SVT while I was asleep but they see it on the monitor when I’m awake and moving around. All my accessory pathways from the WPW are gone from the previous ablations so I’m kind of wondering if other people have had issues with SVT even after ablations. Other active issues right now is I was hospitalized for a PE in February, respiratory failure and severe bradycardia in April and after my failed ablation they coincidentally found a brain aneurysm. So those are all active issues. Along with PTSD and other mental health stuff. TIA!

Top reply
    • SageKay

      527d

      Hi! I have WPW and SVT currently!! I had an ablation in 2016 and just recently is it becoming an issue again. My cardiologist is currently making me wear a heart monitor and the idea of a 2nd possible ablation. They have issues with my SVT while I'm sleeping and we've learned that the SVT wasn't actually the issue. It was my WPW. My cardiologist said that it's quite rare to have both and that it can cause some issues. I recommend asking your cardiologist to look for more possible arrhythmias and see where to go from there.

    • SageKay

      527d

      Hi! I have WPW and SVT currently!! I had an ablation in 2016 and just recently is it becoming an issue again. My cardiologist is currently making me wear a heart monitor and the idea of a 2nd possible ablation. They have issues with my SVT while I'm sleeping and we've learned that the SVT wasn't actually the issue. It was my WPW. My cardiologist said that it's quite rare to have both and that it can cause some issues. I recommend asking your cardiologist to look for more possible arrhythmias and see where to go from there.

    • lindseyb93

      693d

      Hey! I had a similar experience. 2 failed ablations, the 45 minute procedure took 8 hours and they still couldnt fix it. They say the "eletrical misfires" are coming from its in my left ventricle and its very tricky to get to. When they put me under the SVT also stopped so they could only put me slightly under. Scariest experience ever! Ive been struggling with this since i was 16. I wish i could get this fixed!

      • Flightless_Wings

        693d

        @lindseyb93 ugh, I’m seeing a different doctor at University of Michigan and he wants to try to do another ablation and he said I’ll only be slightly sedated and I’m terrified. I have an internal loop recorder and they just did a 2 week external monitor on top of that and they said when I go really tachy they can’t tell if it’s just sinus tach or if it’s SVT, especially since my last failed ablation they were only able to induce sinus tach and not SVT. So because if that they were then thinking it was just sinus tach and not SVT, but when I’m on a heart monitor at the hospital or hooked up to an EKG machine when I have an episode is always reads as junctional SVT. I also have a 1st degree AV block and flip in and out of 2nd degree block. And we just found out on the two week monitor that I also have couplet and triplet VE’s here and there and ventricular trigeminy. Soooo much going on. I was on meds that was controlling it quite nicely for a while but then my heart decided it couldn’t tolerate them anymore and my heart rate bottomed out severely and I was in the hospital for nearly a week. Because I’m so young they’re trying to avoid a pacemaker just yet even tho I will end up with one eventually but I wish they would just do it now so I can go back to living my life. I can’t even take a shower and do basic activities of daily living without my heart rate going up to at least 180 and it’s exhausting. I’ve been off work since April and I’m losing my mind I’m so bored. U of M doc did say I have a 1 in 50 chance of coming out of the procedure with a pacemaker even without intervention. I’m sooo over this.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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