See Alike in...

Alike App

Browser

Manifesting.Gecko

655d

Hey, im new to this app. I recently have started the process of getting diagnosed with Autism as an adult. I know it’s widely spread that self diagnosis is valid in the autistic community due to the ongoing barriers in healthcare and the education of those diagnosing. I was wondering if any of you felt comfortable being self diagnosed before the formal diagnosis? Did/Do you ever feel guilty if you identified as autistic before the diagnosis? I’m battling my own feelings with identifying before the test..Thank you for reading and hopefully answering😅

Top reply
    • mimi88

      654d

      i definitely feel guilty about being self diagnosed but i also know that it's who i am so im trying to keep track of the symptoms and information i learn about ASD so that i can show myself when i feel really guilty and to also help others understand too

    • mimi88

      654d

      i definitely feel guilty about being self diagnosed but i also know that it's who i am so im trying to keep track of the symptoms and information i learn about ASD so that i can show myself when i feel really guilty and to also help others understand too

    • hotpink23

      654d

      I feel the same way. I have a new medical appointment coming up and I wrote in a notebook a long running list of all my ASD symptoms. I am very high functioning so its hard to communicate with doctors that I have discovered this about myself. Maybe writing it down for your doctor could help?

    • Kida0117

      655d

      Girls tend to get diagnosed later in life with autism. The system made to recognize children with autism was based on the information around little boys. I have autism and I was diagnosed around 12. Girls tend to develop a social habit called masking. We mimic other people's behavior. Try to stay away from self diagnosing tho. It's okay to say you think you have autism instead of just assuming. Im not targeting anyone who does tho, I honestly welcome people who think they have autism and I love talking about similarities. It honestly doesn't affect me but, I know TONS of people do target self diagnosed people. So just be careful with how you word things.

    • Sigil

      655d

      I'm self diagnosed for now because with my anxiety, covid is keeping me out of doctors offices. I've known I was different for a long time and just chalked it up to how I react due to PTSD, anxiety, and depression. Self diagnosis is valid. Especially here in the US where access to healthcare is so horrible. Also, as someone born female there are additional barriers to diagnosis for me. Even getting an ADHD diagnosis took 24 yrs of my life to get.

    • chuuniverse

      655d

      currently , i am unable to get diagnosed because of parents who don’t really believe in Black people getting therapy and stuff like that , so self diagnosis is really the only option . i can definitely say that i’ve felt extremely guilty , but when i tell my friends about it they say they can tell it’s real . so now i feel much better about being self-diagnosed , but sometimes when i have bad days i tend to doubt myself . i hope your journey is quick !!

    • SoftCat

      655d

      I personally have a feeling I am high functioning as of recent. But my current therapist refuses to test me for selfish reasons. So as of now I identify with the label. A part of me does worry I might not have it. But even my parents admitted they thought so too for a while. But I hope to get properly tested in the future.

    • Captofthevessel

      655d

      I was verbally diagnosed, because I had just had life-altering brain surgery. Nothing was ever written down for me, I have identified as on the spectrum for about 11 years now, as I was told by a board of doctors that I am. I’d go to a doctor you can trust, though. I wish you the easiest & smoothest journey with this.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion