Self-Diagnosed with Celiac: What Now?

Well hey silly update- I decided to eat gluten and redo the test (believe me it was miserable) and I got a postive test so I do have diagnosed celiac now lol

What happens with coeliac is, everyone has fingers in their intestine called villi. When you have gluten, those villi get eroded. If you've been a year without gluten those villi grow back, that could be the reason you came back as negative for coeliac.

I totally think it is acceptable to say it. So many people get confused by all of the different reasons for not eating gluten and if saying you have celiacs makes it easy for them to understand then totally ok. Also since you cut out gluten before the test it is very likely the test was inaccurate as you have to have a certain amount for damage to show up. Do what’s easiest for you and keeps you and the good you eat safe.

Sorry for your dilemma. Pays to be truthful but done is done. Being sensitive to gluten or grains is not criminal. Live your life the best you can. Many people like myself have multiple sensitivities. Anxiety is part of the overall picture. Seek support from other areas and people. Trust in God. Prov. 3:5,6.

Find me gluten free is a great app!

Yes, celiac tests almost always come back negative if you’ve been avoiding gluten for at least several weeks! You are completely valid to tell whoever you want.. I have had the same situation!!

I’ve been gluten free for fifteen years , and yes I think that’s why it came back negative. I don’t know what grocery stores you have where you live, but there’s a lot of gluten free options . Also if you go online you can find some restaurants, a lot of places have options now.

unethical? definitely not. saying you have celiac doesn’t hurt anyone. the reason you should make sure is for your own health! i have celiac as does my entire family, and ALL of our blood tests came back negative. do a stool test if you haven’t already! that’s where we found out we actually did have it, apparently it’s much more accurate than the blood test. it’s a little weird but it’ll be good to see what your results come back as lmao. if you really don’t wanna have gluten again though, F it- say whatever you want to people! the reason it would be good to make sure though is because there are other things celiac can be indicative of which you might wanna test for- i found out i had a genetic condition which was suspected due to multiple reasons including confirmed celiac disease. the point is- you could always just have a strong sensitivity or allergy to gluten without actually having celiac, but you don’t owe anyone an explanation and if just saying you have celiac is easier i don’t see why you shouldn’t say it. if you decide you’re willing to go through eating gluten again to try the stool test it could help you progress in your medical journey though. good luck!

It is absolutely acceptable. I had cut gluten out of my life for two years before getting tested for celiac, and my allergist told me that even though it says negative, there's a high chance I am celiac because of how my body used to react to anything with gluten. It's totally okay