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Lemonade

783d

I am a self diagnosed autistic trying to get diagnosed.. any advice?

Top reply
    • Amaryllis

      776d

      Self diagnosis is definitely valid. I am self diagnosed, and as an intelligent woman who can mask well and be social, I know it will be extremely hard to get a formal diagnosis. It’s frustrating, but true, and I agree what others have said about misunderstandings about what autism looks like in women and girls. In my mind, the only benefit to being formally diagnosed would be to get accommodations at work under the ADA. But I don’t need those. So I just chose to be self diagnosed and to explain to my family and friends about my needs or stims.

    • Amaryllis

      776d

      Self diagnosis is definitely valid. I am self diagnosed, and as an intelligent woman who can mask well and be social, I know it will be extremely hard to get a formal diagnosis. It’s frustrating, but true, and I agree what others have said about misunderstandings about what autism looks like in women and girls. In my mind, the only benefit to being formally diagnosed would be to get accommodations at work under the ADA. But I don’t need those. So I just chose to be self diagnosed and to explain to my family and friends about my needs or stims.

    • hmm

      779d

      you will most likely need to advocate for yourself a lot, which can be extremely exhausting and hard to do when you're autistic. You might even need to go and get a second opinion if you don't get a diagnosis. Also depending on your agab or what gender you are, this can make it even more difficult- if you're a woman (trans or cis) or even just assigned female at birth regardless of what your gender is now, you are less likely to get diagnosed. The reason for this is because of lack of research in regards to autistic women & females, as well as misogyny in the medical field- it also can have to do with the fact that if you're raised as female, you might have had more social expectations and you learned to mask because of that. Masking is definitely something you should look into, because a lot of doctors will see how good you are at masking and take that as a sign of you not being autistic (which is stupid imo)... For example, if you're able to make eye contact but all of the other traits/symptoms of autism apply to you....they might deny you a diagnosis just based on that. Do your research on who's in your area, check reviews, see if anyone specializes in autism or are an autistic dr them self (i got diagnosed by an autistic dr and i believe that's why the process was so much easier for me compared to others), things like that. A lot of medical professionals will deny you diagnosis' for things that you show all the signs of, they will even write down in your report that you displayed symptoms but refuse to give you a diagnosis anyways. Keep in mind that not every medical professional is an expert in specific conditions, which is why finding a specialist might be helpful. It would probably be helpful for you to write down all the symptoms & to write out which ones apply to you and how. Also, when you're tested, some of the questions can be worded in a confusing way, so if you're able to i would ask for help if you don't understand a question. There's also specific tests for autism diagnosis' sometimes, so if you're going in for a general eval & don't know if they have it, it would be good to let them know beforehand that you want to be tested specifically for that, too. If they refuse to let you take the test, that's an issue with them and you might need to find somewhere else to go because it's unlikely those types of people will give you a diagnosis, let alone consider you for one. overall, it can be incredibly stressful to go through this process, just make sure to document any mistreatment you might face and to remember that you know yourself better than anyone else!

    • Emmy2678

      781d

      I’d recommend trying to get some psychological testing done as well as talking to your therapist/psychiatrist or primary care doctor. Im currently trying to get diagnosed after my therapist suggested I was on the spectrum. It has been a long and hard journey. Good luck!

    • Spazzyjazzy1991

      782d

      Self diagnosis is valid and I have the same question as you. My therapist says she's pretty sure I am autistic but she's not legally allowed to diagnose me and there's nobody around here that diagnoses adults. So I'm self diagnosed technically too

    • Banitha

      782d

      Self diagnosis for autism is valid, getting a diagnosis can be extremely challenging considering most psychologists aren’t taught how to identify autism in people other than white male children.

    • froggiefrog

      782d

      You might be autistic but you might not be. Talk to a doctor. I wouldn't identify as autistic unless you are diagnosed.

    • GuitarShredder03

      783d

      Autism is a spectrum, so just having symptoms doesn’t mean you are autistic. I’d recommend talking to your doctor about getting testing.

    • Lesbianclout

      783d

      I’d recommend bringing it up to your pcp or psychiatrist if you have one! I brought up the want to get tested and after a while of being on the referral list I was tested. Your doctors are there to help :)

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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