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chaireadrepeat

Updated 11mo ago

Struggling with Seizure Episodes and Misdiagnosis

Who else has seizure like episodes? I was hospitalized because of them. I lost the ability to walk. Neurologist keep telling me they're functional and I need physical therapy, but PT made me worse. I truly believe I have ME. I even had a specialist confirm it and they still won't believe it. It's really overwhelming and frustrating.

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ATranceClassic16

2y

🙏Were they able to say if they were, in fact, seizures? Or just seizure-like episodes?
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chaireadrepeat

2y

Non epileptic seizures
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Goose33

2y

it’s absolutely the worst dealing with doctors who don’t believe you. be sure to trust yourself and your body—you know yourself best! I hope you can find a doctor who believes and helps you soon.
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I_Need_Caffeine

2y

I used to until I started taking dr prescribed progesterone pills. Now they are virtually non existent.
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LilBuzzling

2y

ALWAYS FRICKIN PT! They swear it's the end all be all but it's crap half the time

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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