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LilGroot27

738d

I am currently seeking help/diagnosis for pain. I have had serious pain in my back and neck mainly, but also other places. I honestly can't remember the last time I wasn't in some sort of pain, whether severe or mild. I know that fibromyalgia and different forms of arthritis run in my family, but I have yet to find any solutions, clues, etc as to what might be wrong. I'm also suffering from inattentive ADHD, severe fatigue, severe lack of energy, etc and haven't found a solution for those yet, either. I'm always exhausted, very forgetful, and I hate it! I'm still young and shouldn't be having these issues! I'm just very frustrated, and I am very open to any advice, tips, comments, personal experiences, etc. Thanks in advance ♡

Top reply
    • Marcaroni

      732d

      It took me 8 years to finally receive some kind of answer for my symptoms, that are almost identical to yours. I saw a neurologist and they did an MRI of my spine and neck, and found degenerative and herniated disc disease. I was also to let that I “have many symptoms of fibromyalgia”, but frustratingly was never officially diagnosed and only received a paper with yoga poses as treatment. If you are unable to get a diagnosis, I am always open to chat about how I manage my symptoms day to day.

    • Marcaroni

      732d

      It took me 8 years to finally receive some kind of answer for my symptoms, that are almost identical to yours. I saw a neurologist and they did an MRI of my spine and neck, and found degenerative and herniated disc disease. I was also to let that I “have many symptoms of fibromyalgia”, but frustratingly was never officially diagnosed and only received a paper with yoga poses as treatment. If you are unable to get a diagnosis, I am always open to chat about how I manage my symptoms day to day.

    • bobe909

      737d

      I would go to physical therapy. 4 sessions and regular consistent exercises can help a lot. Fixed my back issues but can only speak for myself. 🙏 💕

      • MooieModer

        732d

        @bobe909 yeah...none of that is currently an option. Im 20 days from homeless.

    • MooieModer

      737d

      FOR me, it's: RSD, (Reflex Sympathetic Dystrophy), CMP, (Chronic Myofascia Pain) There's three forms of TOS, (Thoracic Outlet Syndrome) Three sections of my spine have degenerative disc disease. There's osteo arthritis and post traumatic arthritis peppered throughout my body, including my face from multiple skull fractures. All survivour issues of the accident. Then there's psoriatic arthritis that wanders my body a bonus benefit of having psoriasis. Arthritis in my jaw from my husband breaking it twice. My body has been half my life with good days and bad days. The Lord has been faithful through it all. I am grateful to Him for His divine providership. Acronyms RSD - Reflex Sympathetic Dystrophy CMP - Chronic Myofacia Pain TOS - Thoracic Outlet Syndrome That being said that VAC, vertebral artery compression, due to the degenerative disc disease in my cervical spine. That is what caused the stroke that has left my left ear hearing glitchy. That is yet another blessing. That is more often a cause of death. God has a plan

    • anemone

      737d

      fatigue/exhaustion and forgetfulness are fibro symptoms as well, to me that sounds a lot like fibro, especially if you've got a family history of it. diagnosis can be a long process sometimes but keep your chin up... there's been a lot of good research lately, i'm hopeful it'll get easier as they learn more about it

    • LilGroot27

      737d

      I love my psychiatrist, I definitely recommend finding a good one if you feel the need to. And if I'm being honest, it is hard finding a good doctor that takes you seriously, but it is SO worth it. My primary care doctor hasn't been able to help me as much as she doesn't specialize in pain, but she seriously takes all of my input seriously. We know our bodies better than anyone else! Don't let anyone tell you otherwise ♡

    • LilGroot27

      737d

      I do have hypothyroidism, but I have been on medication and in the normal range for a while now. I definitely did think that had something to do with my fatigue, but now I'm thinking it's something else. I'm definitely trying to do my research, there are so many possibilities it's crazy!

    • Soskae

      737d

      I’m here with you. I’ve had less pain and adhd issues since I got my hypothyroidism under control maybe look into that as a possibility? I got a few MRIs done then brought them to my doctor that believes and helps me and he helped diagnose me with arthritis and ruptured disks which helped other doctors take me more seriously. I still have pain because of those problems but I have been given help to deal with it when it’s severe at least. There needs to be more research into the human spine because I swear chronic pain there is so common and so rarely fixed/treated it’s insane to me.

    • Kaykay15

      737d

      I have been suffering with widespread pain for many years. It has become a battle to function each day. My MRI shows issues with my whole spine, which is causing my pain and tingling in my neck, arms, legs, feet, lower and upper back and both hips. I am seeing a Pain Specialist. He prescribes 4 different medicines and they help with only 40% help with the pain. The remaining pain is awful. I went to a Chiropractor several times and he was able to restore my range of motion in my right arm, that I had had problems moving for many years. I am going to admit that I think I am depressed and don’t feel joy or happiness very much anymore. My Primary Doctor and Pain Specialist won’t treat me for depression. They just blow me off when I ask for depression treatment. I’m VERY disappointed about being in so much pain because it limits what I want or need to do. I guess I’m going to have to see a Psychologist or Psychiatrist to get help.

    • MooieModer

      737d

      Looking at 30 years of pain mystery pain then after lots of specialists got dx spread over time.

    • MooieModer

      737d

      Hey, dont give up on you. Press on and keep plugging away. You'll find your way. I was two years MRIs, blood work, sonograms, etc etc etc, and finally a list of issues most of which there are no cures. So learning to live in my body has been the thing. Also, the comical evaluation sheet, on a scale of 1-10 whats your pain level? Um 42. 4.2? No! 42. Forty-two.

      • LilGroot27

        737d

        @MooieModer trying my best not to give up, definitely going to continue doing research and not taking no for an answer!

    • loveshespoke

      737d

      I'm all up in my fatigue, and have been learning to cope for years. Let me know if you'd like to chat!

      • LilGroot27

        737d

        @loveshespoke I'm open to any advice! I'll message you 😊

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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