Seeking Diagnosis for Endometriosis Symptoms

I have literally just been diagnosed with endo via a laparoscopy last week. I have been fighting for this for about 7/8 years now! I have the exact same symptoms you have said, including the butt lighting which I'm now forever calling it 😅 I had to just keep going back and move doctors a couple of times before I was actually taken seriously. I would say to definitely just keep trying! Dont listen to the ones that don't take you seriously and just keep going so they have a record of all of your symptoms. One thing I found really help me, completely by accident, was going onto the depo injection as contraception. I know this doesn't help/work for everyone but it has given me a life. I don't bleed anymore and my cramps have greatly reduced. Its still awful but much more manageable. Obviously talk to a professional before making any decision on things like that but might be worth checking out? If you are okay with taking contraception. I really hope you can get someone who listens to you soon!

Skip your periods. Periods/Bleeding make endometriosis grow. I have the Mirena inserted to Skip periods, pain and prevent endo regrowth. My specialist told me when I was on the pill to Skip the sugar tablets, prevent bleeding, and reduce chance of endo regrowth.

Definitely worth pursuing a gynacological investigation into what could be causing your symptoms. I'm diagnosed with endo and PCOS and recently despite my pain still being the same as when I have had surgery to remove the endo deposits (it went away and came back) I'm now being told I don't have a gynae issue which is infuriating. So I know the importance of getting diagnosis and the right diagnosis too. You have to investigate every avenue you can.

Yes, sounds like classic endo tbh. I would pursue the diagnosis with a specialist, not just a regular gyno. I think you’d have much better results as most GYN aren’t educated properly on endo and perform the wrong kind of “treatment”.

I haven't been diagnosed with endo yet but I relate to this SO much. I tend to have digestive issues and those + period pain is the WORST. It's like one triggers the other and it's an endless cycle of both

I found Evening Primrose oil helped a lot with the cramping type pain. Tells prostaglandins to settle down.

That sounds very familiar to me as someone with Stage 4 endo, including on the bowels, confirmed via excision surgery. I’m not a doctor, and obviously I don’t know if your symptoms could be caused by something else, but because of the similarities, I’d definitely recommend trying to get in to see an endometriosis specialist. Sadly, many gynecologists (and gastroenterologists and PCPs) don’t know how to recognize or treat endometriosis. Check out Nancy’s Nook, Reddit endometriosis groups and/or local Facebook groups to find a reputable specialist who performs excision (not ablation) surgery. If your insurance requires a referral, it can’t hurt to ask your current gyno’s office (even if you aren’t seeing eye to eye on this) or try going through your PCP.

Yes I have the same issue. I have stage 2 endo. I’ve had surgeries but still have it. I’m trying orilissa in pill form but it hasn’t helped yet like I need it.

I’m the same way! I haven’t been diagnosed with endo, but I definitely feel your pain. It’s the reason I have to work from home. But my issue is constipation IBS and super heavy/painful periods. I get stressed from my period so I get constipated which is just more pain added on!