Seeking Advice for POTS and Chronic Pain

Just wanting to seek some advice! I was diagnosed with pots about a year or so ago. I have met with a rheumatologist and I’m waiting to get blood work done currently. I have extremely bad pain in my knees, elbows, wrists and sides of my butt. I’ll have pins and needles all throughout my body (literally everywhere) and burning like sensations as well. Does this sound like fibro or does anyone experience this with their pots? I had a nerve study done on my wrists and arms and everything showed normal. TIA 💙

Your answer

Red914

1y ago

I have this as well, my neurologist said it is neuropathy. She put me on gabapentin for migraines and it has helped with the neuropathy too. Seeing my chiropractor regularly helps too.

Teee

1y ago

how was it diagnosed??

wise

1y ago

yea that's fibro for you :/ especially the pain in your tfa. are you hypermobile? that would also contribute to the pain and paresthesia

Teee

1y ago

not that I’m aware of! When I first got my pots diagnoses my neurologist had me do some bending stuff and he didn’t seem to be concerned!

blackberryjam

1y ago

i have fibro & pots & i experience this! it's from the fibro

Teee

1y ago

it’s so frustrating! How do you manage it? Also, do you feel it in all parts of your body?? I even get it around my chest!

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