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Teee

461d

Just wanting to seek some advice! I was diagnosed with pots about a year or so ago. I have met with a rheumatologist and I’m waiting to get blood work done currently. I have extremely bad pain in my knees, elbows, wrists and sides of my butt. I’ll have pins and needles all throughout my body (literally everywhere) and burning like sensations as well. Does this sound like fibro or does anyone experience this with their pots? I had a nerve study done on my wrists and arms and everything showed normal. TIA 💙

Top reply
    • Teee

      457d

      @Red914 how was it diagnosed??

    • Red914

      458d

      I have this as well, my neurologist said it is neuropathy. She put me on gabapentin for migraines and it has helped with the neuropathy too. Seeing my chiropractor regularly helps too.

      • Teee

        457d

        @Red914 how was it diagnosed??

    • wise

      461d

      yea that's fibro for you :/ especially the pain in your tfa. are you hypermobile? that would also contribute to the pain and paresthesia

      • Teee

        460d

        @wise not that I’m aware of! When I first got my pots diagnoses my neurologist had me do some bending stuff and he didn’t seem to be concerned!

    • blackberryjam

      461d

      i have fibro & pots & i experience this! it's from the fibro

      • Teee

        461d

        @blackberryjam it’s so frustrating! How do you manage it? Also, do you feel it in all parts of your body?? I even get it around my chest!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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