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TheJadeDragon

327d

I, like many others with EDS, have been dealing with pain for a long time and have only been diagnosed recently. I have been going through physical therapy since 9th grade and taking over the counter medicines for a long time. Are there any other methods that I can utilize to help with my pain that you guys have found to help yours? Also a funny side note, my EDS journey started not because of a doctor (even after many many pain derived visits), it was my music teacher that mentioned me possibly having it. Interesting.

Top reply
    • Bijoux_bean22

      314d

      @Student_girl I tried celebrex, but it did not help my pain. It’s probably my mast cells at it again. Glad it works for you though. :)

    • Student_girl

      326d

      Braces, mobility aids (I use platform crutches all the time and a custom chair when I am out and about), prescription meds (I take celebrex which is like advil but a lot stronger)

      • Bijoux_bean22

        314d

        @Student_girl I tried celebrex, but it did not help my pain. It’s probably my mast cells at it again. Glad it works for you though. :)

    • Lunarose1011

      327d

      I use compression braces and do terra essentials Oil deep blue. Works amazing.

    • goblin49

      327d

      There are so many physical methods I use to help with my EDS: braces, splints, tape to name a few. I would say just do your best to go in with a positive mindset when it comes to making your invisible illness visible! It's hard to know you need a brace/mobility aid but you feel like it might be too attention-grabbing or its too much of a hassle to use. Fake it til you make it and do your best to use it because it will benefit you in the end (regardless of other people's opinions, or even your own opinion about it).

    • Fleurine

      327d

      ❤️

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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Physical therapy has been mentioned as a helpful method for managing EDS pain. However, it's important to find physical therapists who are familiar with EDS to avoid further injury. Other methods that have been suggested include using IF units, KT taping, lidocaine patches, aerial yoga, and myofascial release balls. Some people also find relief from medications such as gabapentin, meloxicam, and tizanidine. Support braces for shoulders and pelvis can also be beneficial.

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