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bini

726d

i literally have no idea how this app works but anyways, i’ve had severe scoliosis for quite a while, but was just diagnosed last year. i’m getting surgery in a few weeks, and just wanted to see if there was anyone who’s been through a similar journey to mine!

Top reply
    • Wonder_Woman

      706d

      Advice? 1.research, research the surgeon (how many surgeries similar to yours, read reviews, ask, ask questions (I researched the internet regarding my condition and made a list of concerns and questions) 2. Remember- the surgeon is working for You! Don’t be shy about taking up their time, ask and talk until you are completely satisfied with their response! 3. Check out your options- not all conditions are treated the same! Find the correct doctor/hospital that is best at treating your diagnosis! FYI I went to Mayo Clinic for consultation. They reviewed all my doctors notes, x-rays and MRI’s I provided! Then, sent me a letter stating, “I wasn’t part of their criteria for surgery!” My diagnosis was Idiopathic Adult Onset Scoliosis with app. 86° curvature and kyphosis! Ugh! You might hear, read or be referred to who seems to be the best for you- Not always true! Good luck to you all!

    • Wonder_Woman

      706d

      Advice? 1.research, research the surgeon (how many surgeries similar to yours, read reviews, ask, ask questions (I researched the internet regarding my condition and made a list of concerns and questions) 2. Remember- the surgeon is working for You! Don’t be shy about taking up their time, ask and talk until you are completely satisfied with their response! 3. Check out your options- not all conditions are treated the same! Find the correct doctor/hospital that is best at treating your diagnosis! FYI I went to Mayo Clinic for consultation. They reviewed all my doctors notes, x-rays and MRI’s I provided! Then, sent me a letter stating, “I wasn’t part of their criteria for surgery!” My diagnosis was Idiopathic Adult Onset Scoliosis with app. 86° curvature and kyphosis! Ugh! You might hear, read or be referred to who seems to be the best for you- Not always true! Good luck to you all!

    • ye11owposa

      709d

      Relatable!! I’m 17 about to turn 18. My scoliosis went undiagnosed until September 2021. My surgery is April 15. Love to you all!!

    • Kat_A

      711d

      Mine is 70 and 80 degrees kyphoscoliosis and scoliosis and lordosis... definitely causing damage now and I'm just begging it won't progress to life threatening. I have EDS and I want to find out if tethered cord could be causing it and be relieved.

    • Alec237

      715d

      I was diagnosed at 13 and had my surgery before Christmas the same year. It’s not as scary as it seems, but the best advice I can give is to exercise once your doctor allows it! Stretches, walking, building muscle, etc. Not exercising for long stretches of time will cause chronic pain. Also you’ll be able to feel when it rains 😂 good luck in surgery! You’re stronger than you think.

    • Starlight_in_me

      724d

      I hope everything goes well for you. I had spinal fusion from T4-L4 in 2001. After a growth spurt my scoliosis had worsened considerably. Braces stopped working and surgery was the only option. After surgery I only have a 15 degree curve. If you have any questions I will try and answer them. 🤗

    • stillbella

      725d

      I’m getting surgery this summer

    • bini

      725d

      thank you so much!!

    • frances4ever

      725d

      i had my spine fused at 16 ❤️ i have tons of screws and metal and crap in my spine, i’m like a robot. 😂 in terms of healing it took 3 months, i was on opioid pain meds so it wasn’t bad unless i forgot to take them or bent my back by accident. sleeping in the little brace shell thing sucks at first but i got used to it. also not being able to shower was ICK. the social isolation aspect of it was the worst part to me honestly

    • emiziv

      725d

      hi! i had surgery about 2 months ago from t4 to t12. i’m gonna be honest, the first two weeks were pure agony for me. but i promise you, it gets better and it was 100% worth it. i feel no back pain anymore, you may have a different healing period though.

    • DolphinLily25

      726d

      Good luck; my surgery is on April 11th. 🙏

    • Anxiouswalrus

      726d

      Mine isn’t bad enough to need surgery. My heart goes out to you and I wish you luck with surgery :)

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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