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irlquincy

2y ago

Looking for Scleroderma Support

Does anyone else suffer with scleroderma on this app? It’s quite a rare disease I deal with and I’m wondering if there’s anyone I can share similar troubles with.

Your answer

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MollDoll

2y ago

Yup! Unfortunately I do and am trying to figure out my treatment journey because my dermatologist told me I should start treatment. Currently on topicals but may have to switch to orals and was wondering if anyone else knows what that is like!
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rileya08

1y ago

me! i use the injection version of the orals and while it does suck, it’s a lot better than the oral because it doesn’t cause stomach pain!
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Alergic2shrimp

2y ago

Me!
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Kimberly1950

2y ago

I was just diagnosed with morphea disease this month. I know it is a "relative" to scleroderma. As of right now I only have 2 spots that cause me pain and issues.
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MollDoll

1y ago

Same!

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