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Looking for Scleroderma Support

irlquincy

763d

Does anyone else suffer with scleroderma on this app? It’s quite a rare disease I deal with and I’m wondering if there’s anyone I can share similar troubles with.

1

5

5

Chronic Abdominal Distention

Localized scleroderma

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Top reply
    • MollDoll

      604d

      @Kimberly1950 Same!

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    • MollDoll

      687d

      Yup! Unfortunately I do and am trying to figure out my treatment journey because my dermatologist told me I should start treatment. Currently on topicals but may have to switch to orals and was wondering if anyone else knows what that is like!

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      Reply
      • rileya08

        604d

        @MollDoll me! i use the injection version of the orals and while it does suck, it’s a lot better than the oral because it doesn’t cause stomach pain!

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        Reply
    • Alergic2shrimp

      689d

      Me!

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      Reply
    • Kimberly1950

      703d

      I was just diagnosed with morphea disease this month. I know it is a "relative" to scleroderma. As of right now I only have 2 spots that cause me pain and issues.

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      Reply
      • MollDoll

        604d

        @Kimberly1950 Same!

        0

        Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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