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Eloise

694d

Due to scleroderma, my esophagus is atonal, does not work at all. I am On a fully liquor diet.

Top reply
    • TokingRainbow

      656d

      🤗I see a rheumatologist for my scleroderma. I also have smoldering multiple myeloma.

    • TokingRainbow

      656d

      🤗I see a rheumatologist for my scleroderma. I also have smoldering multiple myeloma.

    • Overcomer

      658d

      One doctor tells me it is just a skin disease and brush me off. Yet the doctors who knows about scleroderma are very concerned and caring towards me

    • Mariarita

      673d

      Scleraderma is the worst and to be honest not many doctors know much about it it’s frustrating to tell a doctor you have scleroderma and they almost look at you is if you have two heads they don’t understand it it’s frustrating

      • SEAGAL

        659d

        @Mariarita it is a text book illness. It affects your connective tissues which are from your head to your toes. You are your own best doctor. Many meds I took affected my digestive tract. Wishing you more good days than bad.

    • witchynurse

      675d

      are you using a nasal cannula for your o2? maybe it is time to ask your pulmonologist about getting a high flow nasal cannula

    • Overcomer

      683d

      A few weeks ago I found out that I have muscle tension dysphoria. But my lungs and heart is good.

    • Overcomer

      683d

      No I don't. I got diagnosed last year

    • Mariarita

      683d

      It’s getting harder and harder to breath. I’m already on 5 L of oxygen 24 seven but it’s getting harder every day because my Scaleraderma is seriously Affecting my ability to breathe

    • Mariarita

      683d

      Has anyone had serious issues with their lungs

    • Overcomer

      689d

      Praying for you

    • Overcomer

      691d

      Will you get better after awhile?

      • Eloise

        689d

        @Overcomer that should have said liquid diet. How funny!

        • Overcomer

          689d

          @Eloise understandable

      • Eloise

        690d

        @Overcomer - no, not unless I can get some new kind of procedure done.

    • Overcomer

      691d

      Oh no. I am so sorry.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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