Living with Scleroderma: My Liquor Diet

Due to scleroderma, my esophagus is atonal, does not work at all. I am On a fully liquor diet.

Your answer

TokingRainbow

2y ago

🤗I see a rheumatologist for my scleroderma. I also have smoldering multiple myeloma.

Overcomer

2y ago

One doctor tells me it is just a skin disease and brush me off. Yet the doctors who knows about scleroderma are very concerned and caring towards me

Mariarita

2y ago

Scleraderma is the worst and to be honest not many doctors know much about it it’s frustrating to tell a doctor you have scleroderma and they almost look at you is if you have two heads they don’t understand it it’s frustrating

SEAGAL

2y ago

it is a text book illness. It affects your connective tissues which are from your head to your toes. You are your own best doctor. Many meds I took affected my digestive tract. Wishing you more good days than bad.

witchynurse

2y ago

are you using a nasal cannula for your o2? maybe it is time to ask your pulmonologist about getting a high flow nasal cannula

Overcomer

2y ago

A few weeks ago I found out that I have muscle tension dysphoria. But my lungs and heart is good.

Overcomer

2y ago

No I don't. I got diagnosed last year

Mariarita

2y ago

It’s getting harder and harder to breath. I’m already on 5 L of oxygen 24 seven but it’s getting harder every day because my Scaleraderma is seriously Affecting my ability to breathe

Mariarita

2y ago

Has anyone had serious issues with their lungs

Overcomer

2y ago

Praying for you

Overcomer

2y ago

Will you get better after awhile?

Eloise

2y ago

that should have said liquid diet. How funny!

Eloise

2y ago

- no, not unless I can get some new kind of procedure done.

Overcomer

2y ago

Oh no. I am so sorry.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

About Alike Wisdom Blog FAQ Editorial Team All Conditions All Posts All Communities

Your Privacy Stories Community Guidelines Terms of Use Privacy Policy Helplines Contact Us Group Chats Guidelines