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767d
Due to scleroderma, my esophagus is atonal, does not work at all. I am On a fully liquor diet.
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Scleroderma (Crest Syndrome)
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729d
š¤I see a rheumatologist for my scleroderma. I also have smoldering multiple myeloma.
731d
One doctor tells me it is just a skin disease and brush me off. Yet the doctors who knows about scleroderma are very concerned and caring towards me
746d
Scleraderma is the worst and to be honest not many doctors know much about it itās frustrating to tell a doctor you have scleroderma and they almost look at you is if you have two heads they donāt understand it itās frustrating
732d
@Mariarita it is a text book illness. It affects your connective tissues which are from your head to your toes. You are your own best doctor. Many meds I took affected my digestive tract. Wishing you more good days than bad.
748d
are you using a nasal cannula for your o2? maybe it is time to ask your pulmonologist about getting a high flow nasal cannula
756d
A few weeks ago I found out that I have muscle tension dysphoria. But my lungs and heart is good.
No I don't. I got diagnosed last year
Itās getting harder and harder to breath. Iām already on 5 L of oxygen 24 seven but itās getting harder every day because my Scaleraderma is seriously Affecting my ability to breathe
1
Has anyone had serious issues with their lungs
762d
Praying for you
764d
Will you get better after awhile?
@Overcomer that should have said liquid diet. How funny!
@Eloise understandable
763d
@Overcomer - no, not unless I can get some new kind of procedure done.
Oh no. I am so sorry.
ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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