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Eloise

Updated 11mo ago

Living with Scleroderma: My Liquor Diet

Due to scleroderma, my esophagus is atonal, does not work at all. I am On a fully liquor diet.

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Overcomer

2y

Oh no. I am so sorry.
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Overcomer

2y

Will you get better after awhile?
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Eloise

2y

- no, not unless I can get some new kind of procedure done.
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Eloise

2y

that should have said liquid diet. How funny!
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Overcomer

2y

Praying for you
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Mariarita

2y

Has anyone had serious issues with their lungs
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Mariarita

2y

It’s getting harder and harder to breath. I’m already on 5 L of oxygen 24 seven but it’s getting harder every day because my Scaleraderma is seriously Affecting my ability to breathe
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Overcomer

2y

No I don't. I got diagnosed last year
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Overcomer

2y

A few weeks ago I found out that I have muscle tension dysphoria. But my lungs and heart is good.
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witchynurse

2y

are you using a nasal cannula for your o2? maybe it is time to ask your pulmonologist about getting a high flow nasal cannula
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Mariarita

2y

Scleraderma is the worst and to be honest not many doctors know much about it it’s frustrating to tell a doctor you have scleroderma and they almost look at you is if you have two heads they don’t understand it it’s frustrating
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SEAGAL

2y

it is a text book illness. It affects your connective tissues which are from your head to your toes. You are your own best doctor. Many meds I took affected my digestive tract. Wishing you more good days than bad.
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Overcomer

2y

One doctor tells me it is just a skin disease and brush me off. Yet the doctors who knows about scleroderma are very concerned and caring towards me
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TokingRainbow

2y

🤗I see a rheumatologist for my scleroderma. I also have smoldering multiple myeloma.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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