Recently Diagnosed with Sarcoidosis: Seeking Advice

You have to have a biopsy. There is no blood test out there that can definitively say your issue is Sarc VS something else. If your doc has made this diagnosis based on a blood test then what they have actually done is taken all the diseases they know of that can cause the issues you're having, run the tests they know that will give them diagnoses, and when they all came back "negative", they decided it must be Sarc because it wasn't anything else. A diagnosis of exclusion isn't a proper diagnosis.

I was diagnosed with pulmonary and lymphatic sarcoidosis in 2018. I had a lung biopsy

I had lung biopsy and PET scan

Biopsy from my lung

How was you diagnosed with systemic sarcoidosis?

They found nodules in my gallbladder and sinuses. Also, I have lung, heart, and skin involvement. I have hearing loss that they feel is associated. Plus food allergies (peanuts and red dye) when I have a sarcoid flair. I doctor with a team at Mayo Clinic.

Hi, Elaine_L what else do you have that got you the diagnose of systemic sarcoidosis?

I was diagnosed via lung biopsy. I have systemic sarcoidosis.

I have pulmonary sarcoidosis and was diagnosed by a lung biopsy. If you have any questions ask. Hope you are feeling well. 🙂

I had lung biopsys, it’s been scary during Covid for sure. With pulmonary sarcoidosis I’m a nervous wreck. It hasn’t been active in years, but there is permanent damage. When it was active I was mainly feeling exhausted, I was about 30 raising my baby and wondering why I was struggling so much. The exhaustion was debilitating

I was diagnosed by biopsy of some big red nodules on my legs otherwise I would have had to have a lung biopsy.

What kind of sarcoidosis? I have Pulmonary sarcoidosis, I needed a lung biopsy to diagnose that. What kind you diagnose from the blood?