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Annayenney

622d

I was wondering how I should go about getting saline infusions. My symptoms have been worsening for about 3 weeks and I’ve had really low blood pressure, usually around 80/40. I was thinking saline might help but I’m not really sure how to get that prescribed. It’s so expensive!

    • Officialishness

      622d

      I would first try oral supplements of sodium citrate and possibly potassium and magnesium as well. Take about 8 extra grams of sodium typically in tablet form. There is plain sodium pills or vitassium has all 3 electrolytes but bit more expensive. Try a regimen of those 8 extra g of sodium first. I’d use infusion as a last resort. They come with their own complications of infection; and are expensive and generally a pain in the ass personally lol Ports come with tons of restrictions and rules so overtime I realized it wasn’t right for me. Oral sodium and vitassium worked for me and allowed lot more freedom without a port and wayyy less expensive. I’d use a port/saline infusions as a last resort if oral treatments don’t seem to be working. Also for a prescription you just need to talk to your doctor who is treating your dysautonomia and see how they want to go about it. Hope that helps and you feel better soon

      • Annayenney

        622d

        @Officialishness thank you! I appreciate it! One of my biggest issues is that my doctor who treats my dysautonomia is extremely popular among pots patients and I struggle to get appointments. My next one is in 3 months. I’ve had to resort to my pcp for a lot of things. I’ve been taking 3000 mg of sodium a day and and potassium as well. I’ve noticed magnesium worsens my symptoms so I stay away from it. But yeah… my symptoms haven’t gotten better with the sodium uptake…

        • Officialishness

          622d

          @Annayenney I would try to up your sodium and definitely avoid anything that makes it worse. Typically for POTS you want 5-8 extra grams of sodium in your diet, on top of your daily intake. Also see if your specialist has a nurses aid or a patient portal where you can leave a message or even try to leave a voicemail. I would just explain that you would like to talk to a nurse/Dr and see what they think of infusion therapy. I go to a new clinic with dysautonomia specialty so I know it can be a huge pain to get in so I would focus on seeing a nurse if possible and also ask to be waitlisted for a sooner apple

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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