Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

Honesty

Updated 11mo ago

Living with RSD/CRPS and the Journey to Find Relief

hello... I'm new on Alike. I did respond to a few people asking about SCS. I have RSD/CRPS (whatever you want to call it) since 1994. It started in my right foot. Then it spread throughout my entire body. I had many many doctors that didn't know anything about our conditions or they were just stringing me along to milk the insurance company. It took nearly two years before they finally diagnosed me. My first SCS was implanted in May 1996 it was a company named Medtronics. Since then I've had many more due to bad doctors implanting them. Luckily in the past ten years... I've had the best Nero Surgeon. The first one he implanted last 5 years and the second one has lasted 5 years, too. I have an apt. with him on Monday, because it's been 5 years and the Cervical and Thoracic SCS need to be replaced. I have ABBOTT inside me right now. I'll be having Boston Scientific implanted... hopefully soon. Cause right now it's feels like 1995... The pain is unbearable. I'm having to take extra pain meds right now... but I know after the surgery and 8 week recovery time I'll be able to get back to 3-4 Oxyicodone in 24 hours. I hope you all will chat. and ask me questions tomorrow. I have a great deal of experiences with this horrible illness, that I'd love to share. (( )) Gently hugs to everyone out there dealing with this HELL.

Can you help? Connect today

avatar

fabaunt

2y

Is 8 weeks the normal recovery? What kind of restrictions did you have? I'm having Boston scientific implanted on 5/6 and would love to know what to expect for recovery.
avatar

Honesty

2y

On 28Oct'22 my Abbott generators both stopped working, So they replaced them with Boston Scientific. No the 2 Abbott paddles in my spinal cord need replacing, Hopefully that'll happen really soon.
avatar

Dunn

2y

I currently have an Abbott and I really like it. What issues have you run into with it? I’ve had mine for about a couple of years
avatar

Honesty

2y

My ABBOTT'S been in for five years. I had the St. Jude SCS before that. Before that was ANS. Before that was NEUROMED. My first SCS was Medtronics. The four SCS after Medtronic was a the same company... They just changing their name. My last two SCS have lasted five years each. The ones before that were only 2-3 years.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc