Long-awaited Rheumatology Appointment for EDS Diagnosis

I finally have an appointment with a rheumatology consultant afterwaiting 5 years to be take seriously. hopefully I'll get the genetic testing I need for an EDS diagnosis. any tips on what to expect (uk)?

Your answer

Sunflower.System

4mo ago

My rheumatologist wasn't able to push through genetic testing for me, they said I'd have to pay out of pocket. My primary care doctor was able to get the EDS testing for me somehow, I didn't pay anything.

Sunflower.System

4mo ago

I'm in the US so it's probably different

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