Reynaud's and Lupus: Seeking Advice

I haven't updated my profile yet. Think my Reynaud's may be associated with lupus. Is this something you have experience with?

Your answer

coffeemama

2y ago

I've been told I have Fibromyalgia for years. My doctor done some blood work a month or so ago and my ANA was abnormal. She's sending me to a rheumatologist to check for other possibilities. I have so many symptoms that indicate Lupus. They couldn't get me in until October! 🙄 What are your Lupus related symptoms?

TreSc

2y ago

My symptoms are constant pain, like I got hit by a truck tenderness/inflamation in my knees fingers, shoulders, hair loss, tired/exhausted even after resting most of the day, constant headaches, low grade fevers, numbness in legs and hands and fingertips (especially when cold)

NicoleAS

2y ago

sounds just like lupus! Are you seeing a rheumatologist? I have a compounding cream that has vasodilator (blood pressure med but in cream) that I can use to help open the tiny blood vessels in my toes. I also took viagra (off label use prescribed by my primary dr) to help with blood circulation. 1 winter I developed diabetic type ulcers on my toes from lack of blood flow- that’s when I got the cream & viagra! Lol

NicoleAS

2y ago

Yes, definitely related!

TreSc

2y ago

Yes. Experienced this before I was diagnosed with Lupus. Thought it was because I was anemic. My fingers are affected the most. And it can sometimes be hard to warm them up to get feeling back in them. People laugh at me sometimes because I wear gloves sometimes during the warmer months.

gramps

2y ago

Thanks for your response! What are your Lupus symptoms and how did the diagnosis process go? Frozen fingers crossed I'm not dealing with it but it looks like a better explanation of my weird variety of symptoms than anything else.

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