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ParkersMom

778d

Has a yone gone into remission?

Top reply
    • Sweet_Lou

      759d

      I was in remission for about 7 years taking just hydroxychloroquine but then I lost my health insurance. 4 years later I got it back and my disease had progressed so much that my new doc said that treatment wouldn’t work anymore. I wish it would because I hate the side effects from the Simponi infusions

    • Sweet_Lou

      759d

      I was in remission for about 7 years taking just hydroxychloroquine but then I lost my health insurance. 4 years later I got it back and my disease had progressed so much that my new doc said that treatment wouldn’t work anymore. I wish it would because I hate the side effects from the Simponi infusions

    • uno

      771d

      It is a progressive disease

    • ParkersMom

      773d

      ❤️

    • DelilahLilli

      774d

      Med free remission? No. Medicated in combination with diet? Yes. I’ve had RA since pre adolescence. I take daily Xeljanz and eat a low fat, gf, vegan diet. I don’t feel like I have RA. My joints feel great. I have gone off meds and switched meds for various reasons, through the years, ie Pregnancy, postpartum…. My joints are in near perfect condition. As a teenager, I was in remission on medication, and thought I could just go off meds…that didn’t go well. I experienced some joint damage during that period of abstaining from meds and eating everything. Since then, more than 20 years later, my joints have retained strength and mobility. I can exercise, rock climb, do push ups….everything. I feel great.

    • Cledus

      777d

      I have had it 8-10 years, no sorry,mine is worse.

      • Boo1964

        775d

        @Cledus Mine too. It doesn't seem to get better at all, but I'm not on medications for it and nothing seems to help, especially since they have stopped people from getting pain meds. They have treated me like I'm a junkie and have put me on Subutex and took me off pain meds period. I've had issues with my colon that I've had 4 surgeries that have left me with IBS and very limited things I can eat. My Dr has been very good to me but none of the surgeons seem to care. They treat me like I'm just another drug addict since I've been put on Subutex. Everyone, even the pharmacist treats me the same way. They were never like this before all the problems came up that not only do I have RA, but they don't care. They act like I brought it on myself or something. It's ridiculous! I'm going to see a rheumatologist next week and I'm desperately praying for help. I'm afraid he's gonna treat me the same way and I really don't know what to do. I'm 57 years old and I don't know how long my life will be but it's really scary just knowing that this is only going to get worse and I really need help! Does anyone have any suggestions?

        • Tiny_Dancer

          773d

          @Boo1964 The only way to achieve remission is to stop inflammation. Everywhere your blood flows can affect that area with inflammation, causing long term problems. Of course your age and lack of treatment are working against you for remission…but not impossible theoretically. Your best, and probably only help, is to take a biologic. These are usually in infusion or injection form. If your Rheumatologists haven’t mentioned these, shame on them. A lot of people start with some steroids and methotrexate, decreasing on steroids once inflammation is lessened. When inflammation is lessened, damage will be and pain also. Keep looking for a new Rheumatologist until you get one who discusses a plan for you and who shows sympathy for your pain. They are out there-your life depends on getting one. You can do this!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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