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EDSdancer

493d

I had a cardiology appointment today and they said I probably have POTS. Does anyone else feel a sense of relief/validation when they get a diagnosis? I was always under the impression that I was just being dramatic, I think because my sister is so much more disabled than me so I had the be self sufficient growing up.

Top reply
    • AeL

      493d

      I definitely get a sense of relief. For some reason people think it’s supposed to be horrible to receive a diagnosis, and maybe for some it is, but if you’ve been struggling for a long time with no answers, an actual diagnosis can be the most validating thing!

    • Asteroidrose

      492d

      after months of being told that it was all in my head, yes.

    • clovers

      493d

      I 100% feel relief with every new diagnosis. People find that weird because they assume I'm excited to have the health issue but what I'm relieved and excited about it knowing what the problem is so I can treat it and/or try to live in the best way I can with the issue.

    • Mira.P.Takki

      493d

      Yes! 100%!!! Having a name for my experience has been life changing. It gives me the ability to advocate for myself in a more confident way. For example, I walk straight to the front of the line to pick up my kiddo. There’s only one small sliver of shade and I feel way way more confident walking past everyone because now I can name why I need that relief, rather than just saying, “Sun makes me hot and uncomfortable”.

    • AllieMae

      493d

      I find that relieving as well! It’s so nice not to have to keep looking for an answer and worrying. My mom had breast cancer, and as much as I love her and am SO glad she is better, it definitely feels like my sickness isn’t very valid compared to that. So I do feel you there :(

    • AeL

      493d

      I definitely get a sense of relief. For some reason people think it’s supposed to be horrible to receive a diagnosis, and maybe for some it is, but if you’ve been struggling for a long time with no answers, an actual diagnosis can be the most validating thing!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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