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Lily_Lys's Post

Lily_Lys

Updated 11mo ago

Recurring Headaches, Nausea, and Exhaustion - Seeking Help

This is a long shot but I need to see if anybody else has this. No doctor has been able to figure this out and I'm completely lost. - Consistent, recurring, severe headaches/migraines that last 5-8hrs -Nausea after eating -Dizziness when standing up (but normal iron) -No appetite -Exhaustion constantly -Recurring stomach cramps (like period cramps, but not on period) -Irregular period (6-8 months without one only to have a very short light one) -Nosebleeds

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Flightlessbird

I would look into neck instability. I have a lot of that and it can cause some really strange symptoms. Including abdominal pain if the vagus nerve is being pinched. Also Chiari malformation causes severe migraines.

Lily_Lys

I'll look into it, who should I talk to about it?

daisy13

For the cramps and irregular period I would say maybe look into PCOS I know that PCOS can really affect the ovulation meaning that you can go a bunch of months without a period and it can also cause cramps without a period as well

Lily_Lys

I'll look into it, thank you

KitKat1450

Look into autonomic nervous system dysfunction and POTS (postural orthostatic tachycardia syndrome)- have a lot of the same symptoms as you stated in a POTS flare and gets worse with endometriosis/cramping.

Lily_Lys

briefly looked into POTS and it explains alot, going to bring it up next appointment

Heaven197987

Get b12 checked

Lily_Lys

B12 is normal but will look into getting it rechecked

IndigoBro

Nosebleeds could be vitamin K deficiency

Flightlessbird

I would talk to a neurologist that understands EDS. Neck instability is very common in EDS but missed by most doctors.

D3stiny

I see that you have epilepsy. Maybe it could be a side effect of the meditation OR there are possibilities where epilepsy can lead to more serious disorders as well. Def talk to Neuro about it

Daretta

Do you take medication? I found out the medication I was taking had migraines as a side effect.

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