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Lily_Lys

650d

This is a long shot but I need to see if anybody else has this. No doctor has been able to figure this out and I'm completely lost. - Consistent, recurring, severe headaches/migraines that last 5-8hrs -Nausea after eating -Dizziness when standing up (but normal iron) -No appetite -Exhaustion constantly -Recurring stomach cramps (like period cramps, but not on period) -Irregular period (6-8 months without one only to have a very short light one) -Nosebleeds

Top reply
    • KitKat1450

      650d

      Look into autonomic nervous system dysfunction and POTS (postural orthostatic tachycardia syndrome)- have a lot of the same symptoms as you stated in a POTS flare and gets worse with endometriosis/cramping.

    • Daretta

      650d

      Do you take medication? I found out the medication I was taking had migraines as a side effect.

    • D3stiny

      650d

      I see that you have epilepsy. Maybe it could be a side effect of the meditation OR there are possibilities where epilepsy can lead to more serious disorders as well. Def talk to Neuro about it

    • Flightlessbird

      650d

      I would talk to a neurologist that understands EDS. Neck instability is very common in EDS but missed by most doctors.

    • IndigoBro

      650d

      Nosebleeds could be vitamin K deficiency

    • Heaven197987

      650d

      Get b12 checked

      • Lily_Lys

        650d

        @Heaven197987 B12 is normal but will look into getting it rechecked

    • KitKat1450

      650d

      Look into autonomic nervous system dysfunction and POTS (postural orthostatic tachycardia syndrome)- have a lot of the same symptoms as you stated in a POTS flare and gets worse with endometriosis/cramping.

      • Lily_Lys

        650d

        @KitKat1450 briefly looked into POTS and it explains alot, going to bring it up next appointment

        • KitKat1450

          650d

          @Lily_Lys hopefully the appointment is promising🙏🏻 cardiologist can diagnose POTS. One test is a tilt table test that you can recreate at home if you want a better idea before going to your doctor. (Google at home home tilt table test or poor mans tilt table test). From what I’ve heard a Neurologist can help too but they may refer you to a cardiologist to actually confirm diagnosis. Hope you find relief soon.

    • daisy13

      650d

      For the cramps and irregular period I would say maybe look into PCOS I know that PCOS can really affect the ovulation meaning that you can go a bunch of months without a period and it can also cause cramps without a period as well

      • Lily_Lys

        650d

        @daisy13 I'll look into it, thank you

    • Flightlessbird

      650d

      I would look into neck instability. I have a lot of that and it can cause some really strange symptoms. Including abdominal pain if the vagus nerve is being pinched. Also Chiari malformation causes severe migraines.

      • Lily_Lys

        650d

        @Flightlessbird I'll look into it, who should I talk to about it?

        • Angiebear35

          650d

          @Lily_Lys I agree, I have cervical instability and also autoimmune issues and I get many of same symptoms as you and gastroparesis, look that up as well. It is highly likely you will get blown off by most doctors but ideally you would need an upright MRI or at least x-rays of your neck in flexion and extension and that is from a neck and spine specialist.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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