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Amethyst15

749d

What is the temperature like when you guys notice an attack? I’m thinking about mentioning to my doctor that I want to start a medication for my Raynaud’s but I’m worried I’m just being dramatic about it. I go to school somewhere warmer than where I grew up but my hands still hurt so much in the cold.

Top reply
    • Sarahwags

      737d

      Mine can be anything! I can be in a hot shower. It’s nuts. I guess mine is syndrome or disease - idk which - but the vessels clamp down and the spasms can come on anytime. Be careful w Raynauds - don’t be afraid to ask for meds. Mine went from a nuisance to blue hands in a matter of months. Then ulcers form and won’t heal without circulation. I came within days of amputation. Nifedipine and tadalfadil saved 2 of my fingers.

    • Sarahwags

      737d

      Mine can be anything! I can be in a hot shower. It’s nuts. I guess mine is syndrome or disease - idk which - but the vessels clamp down and the spasms can come on anytime. Be careful w Raynauds - don’t be afraid to ask for meds. Mine went from a nuisance to blue hands in a matter of months. Then ulcers form and won’t heal without circulation. I came within days of amputation. Nifedipine and tadalfadil saved 2 of my fingers.

    • BJA

      744d

      72 or below

    • Amethyst15

      749d

      Okay, thank you! For me, anything below 60 causes attacks but I’ve had pain at temperatures warmer than that. I never thought about the impact of my hands/feet being wet though. I’ll have to pay attention to that in the future! Thank you again!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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