Understanding the Progression of Rare Leukemia

with this type of leukemia which is so rare there is no tx or current trials what should I expect as progression with this leukemia... only 1000 cases in United States a year

Your answer

Jack2021

5mo ago

Living with this rare leukemia is a constant battle, not just physically but emotionally. I've learned to focus on what I can control and try to stay as healthy as possible.

Columbtheexplorer

5mo ago

I learned to advocate fiercely for myself. With a rare diagnosis, you sometimes have to explore unconventional paths.

lukall

6mo ago

It depends... When were you diagnosed? There is so much veration dependent in how good you react to the treatments... But stay positive!!

Mantis

2y ago

When we're you diagnosed? I'm 2.5 years out from treatment. Responded well to chemo and am currently in remission. Have faith that everything will be ok and you will get through this! Take it one day at a time and be strong. I have 2 kids I'm fighting for. What's your reason? You can beat this too! 🙏

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