Questions about Ehlers-Danlos Syndrome Symptoms

Haha I'll have to work om my grip strength then my fingers have been dislocating alot perks of manual wheelchair use 😅

Most likely you are having subluxations which are partial dislocations. Very common with EDS. Keeping your muscles strong and watching your positioning to avoid too much stress on the joint are the best thing you can do. The ligaments don’t do trot job well, so strong muscle helps. Physical or occupational therapy can be helpful. I’m an OT, and we can teach joint preservation techniques, ergonomics, positioning, and strengthening

Sounds a lot like EDS could be what they call sublaxs

I agree, definitely subluxations ❤️ and PT is best! It’s definitely my home away from home 😆 They should be focusing on strengthening around the problem areas and not stretching/range of motion. Definitely ask when you call a place if you can be paired up with anyone knowledgeable on EDS or at minimum hyper mobility. They should never push you too hard/understand you’ll have days with ups and downs ♥️ 🤗 Also I’d def recommend getting a custom night guard from your dentist. My state insurance covered it. I have TMJ and I can say my jaw pain is almost gone by wearing this while I sleep every night. I was very impressed 🤪♥️

I get this a lot. Like you, in my hips the most. I believe you're describing a subluxation. Honestly having a good PT has been life changing. I only need to see her every few months now but she really helped. She also introduced me to small microcurrent therapy which has also been life changing