Questioning My Symptoms

Yeah I saw an allergist who said the face rash was out of her area and recommended a dermatologist. I take 2 10mg Zyrtec twice a day to keep my hives at bay.

@SugarFoot When I was in the midst of the chronic hives, I was on a lot of medication, both traditional and alternative (i.e. herbs). I was only 10 years old. I cannot remember what finally got them under control. It was surely a cocktail of many things, I know. Eventually, I was able to start reducing things and was stabilized by two 10 mg Zyrtec, once in morning and once at night. This was when Zyrtec was still a prescription. It is now available OTC. A few years back, I was again able to reduce to one 10 mg Zyrtec at night and it keeps the hives at bay. If I miss just one dose, I become itchy again. If I miss two doses, the hives are back. They are always there, under the surface just waiting on missing out on antihistamine which is just so crazy to think of almost 20 years later.

@whitephantom Do you mind sharing what kind of meds control your hives? I see a dermatologist next month for hives. Had them 20 years, one of my most maddening symptoms

Hmm...well I have experienced rashes before but not like the one you described. I have had fibro for 20 years. I used to have chronic hives too, but have been able to control those with medication. It is so frustrating waiting for a doctor. I have to wait 5 months to get into a gastroenterologist. Thank God my doctor put me on medicine for acid reflux, because he thinks that is what I have but needs the test to confirm it. Anyways, I would try to seek out a different doctor while you wait for the rheumatologist. Maybe see a dermatologist? I'm not exactly sure. Is the rash itchy?

Yeah my blood work says I’m a healthy person. I mentioned it to my doctor and she says she doesn’t know what the rash is from but refuses to believe I have anything but Fibro. She’s sending a referral to a rheumatologist but because of covid they won’t see any new patients for just Fibro.

From a quick internet search, a butterfly rash is an indication of lupus, an autoimmune disease that has a LOT of similar symptoms to fibromyalgia. I'm pretty sure lupus has a blood test for it. Might wanna get that checked out. People who have lupus get misdiagnosed with fibromyalgia all the time.

Absolutely! I have a butterfly rash that goes across my nose. It ranges in color from barely visible to a bright pink. I was diagnosed with Fibro in March of last year but have been in this flair since September of 2020 without any relief. I have good days and bad days of course, but it’s still always there. From the research I’ve done, Fibro is supposed to come in flairs right? I can go over all the medication I’ve taken (it’s been a lot) but none of it helps.

Fibromyalgia has a LOT of symptoms. Unfortunately, I can't post a pic on here that I have with an extensive list of fibro symptoms. Would you mind being more specific as to which symptoms you have that you feel may not be linked to fibromyalgia?