Questioning My Gastroparesis Diagnosis

I'm 34 and was diagnosed with gastroparesis about 10 years ago through a gastro-emptying study. However, in looking at the symptoms, I don't know that the diagnosis is right. Until recently (like this month), I rarely became nauseated. I've always been a big eater, I'm not malnourished. I have had stomach issues from birth (spitting up consumed food), and maybe I've just always had it so I didn't develop those symptoms in the same way. I don't know. The doc that diagnosed me dismissed me when I refused to be on the medication he prescribed because it made me extremely jittery. A doctor a few years later told me I just "have an intolerance to all food" and dismissed me. I have another stomach emptying coming up and hope I will learn more, but I am wondering how common any of this is.

Your answer

McPeaches79

2y ago

Hey there! Was diagnoses in Feb 2011 with Gastroparesis (GP). It's been a Rollercoaster. I have had an NJ, J tube and pyloroplasty, Stomach neurostimulater, GJ, and Port. I got neurostimulater removed after a year. Still have tube since like 2013. Tried Reglan and Domperidone. Both not for me. Tried Desperine and Erythromycin. Had reactions. Tried Gabapentin and again nothing.

lunargoddess87

2y ago

so it sounds then like this happens for a lot of people. I'm hoping I'm not just dismissed this time.

1stMayflowers

2y ago

For me, nausea is a huge thing. I lost somewhere around 40lbs (started heavy, fortunately) in a few month's time. Probably actually much less time, but I wasn't tracking. I have learned that GP seems to be...not a catch-all, but very flexible in terms of how it affects individuals. Some manage great with only an altered diet, while some need feeding tubes. I personally seem to fall somewhere in the middle, towards the milder side. But ask me when I've gone a week without eating, I might say something else! I was only dx'd in June, about a month and a half ago, after a few days in the hospital and an emptying study which confirmed my stomach is slow, but that's ALL I know. I'm set up to do an endoscopy soon to see if they find anything else.

1stMayflowers

2y ago

Oh, I never had (lasting) abnormal GI issues until around April of this year. I seem to be unbelievably lucky to have gotten a dx so fast.

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