See Alike in...

Alike App

Browser

Telescopial

745d

I have recently come to question whether I may be on the spectrum. I am already diagnosed with ADHD but there were still many things about myself that still just didn’t seem “right” and I felt very alone until I found the ASD community. I would love to discuss what made you realize that you were, in fact, on the spectrum as I do not want to insert myself in community discussions without knowing whether I am actually part of the ASD community.

Top reply
    • SunInAugust

      745d

      Hello! I just got formally diagnosed autistic a couple months ago and honestly....I still question it. I think its almost a fundamental part of being autistic- not wanting to accidently take up space thats not ours to take. Self diagnosis is valid. Doubt is common and understandable. There are a few things that help me. I remember walking on the balls of feet as a kid. Or repeating small tasks like tying my shoes over and over. I listen to the same song on repeat. I was a twice exceptional student - in both special needs and gifted classes. I had a really large vocabulary at 2 or 3 years old. I was a picky eater with migraines who was so structured with routines I didn't need an alarm ever to wake up and get myself ready for school as a small child. Its hard to accept my diagnosis sometimes because I went so long without it and am not sure who I am without masking. Without a strong sense of identity its hard to fit a new describing word into any one place and have it stick. I'm generally considered low needs. And most people wouldn't see me as autistic. I rarely do the hand floppy thing. I can make eye contact if I have to. But I happened to almost exclusively make friends with only adhd and asd peeps. And thats not a coincidence.

    • SunInAugust

      745d

      i also "talk in paragraphs" like your lengthy reply - a common autistic trait. I struggle with introspection, or the ability to feel my body (to feel hunger cues) And i also struggle socially. Auditory sensory issues......all day it feels like a fight or flight level of distress. Wholly unmangable without headphones.

    • SunInAugust

      745d

      Hello! I just got formally diagnosed autistic a couple months ago and honestly....I still question it. I think its almost a fundamental part of being autistic- not wanting to accidently take up space thats not ours to take. Self diagnosis is valid. Doubt is common and understandable. There are a few things that help me. I remember walking on the balls of feet as a kid. Or repeating small tasks like tying my shoes over and over. I listen to the same song on repeat. I was a twice exceptional student - in both special needs and gifted classes. I had a really large vocabulary at 2 or 3 years old. I was a picky eater with migraines who was so structured with routines I didn't need an alarm ever to wake up and get myself ready for school as a small child. Its hard to accept my diagnosis sometimes because I went so long without it and am not sure who I am without masking. Without a strong sense of identity its hard to fit a new describing word into any one place and have it stick. I'm generally considered low needs. And most people wouldn't see me as autistic. I rarely do the hand floppy thing. I can make eye contact if I have to. But I happened to almost exclusively make friends with only adhd and asd peeps. And thats not a coincidence.

      • Telescopial

        745d

        @SunInAugust Thank you for including the part about doubt being common. I struggle heavily with feeling like i’m misdiagnosing myself but that’s also a result of never being listened to by health professionals. It’s also difficult because my behaviors are nearly all contradicting which I’ve heard from others with ADHD+ASD and it causes me to feel like i’m trapped in a box where the walls are slowly moving in and crushing me into myself. Some of my behaviors include: - Picking at my bellybutton: It’s all scar tissues at this point because I scrape and pick until a piece of skin comes off then I rip it off. I don’t always notice when i’m doing it and have wondered if this is just anxiety or if it could be considered a stim. - Unintentional eating disorder: I have never wanted to lose weight ever and actually struggle with being underweight and how I look. I recently realized I had gone days without eating or sleeping and felt fine for the most part. I just don’t feel hungry during the day unless I engage in 🍃, but sometimes I will find myself binging from 2-5 am like my body finally is ready to eat. I was a very adventurous eater as a child but now have developed very few foods that don’t feel “heavy” or something is just off about them. I lived on hot fries and mountain dew for about a year in my preteens and go through phases where I can only eat certain foods or my throat will literally freeze up and if I force them down I feel bloated and nauseas. - I used to sleep 12-15 hours a day but now can easily go days without sleeping, I also have chronic fatigue that isn’t effected whether I sleep 1 hour or 12. My circadian clock is on a 180 schedule. Around 10pm it feels like i’m finally waking up, 8-4pm feels like the middle of the night. - I’ve begun to realize that my “friends” in school were laughing at me. I was a clown for entertainment and I thought this was just how others connected, because my attempts to connect through info dumping or debate taught me that this was not what people wanted. - I simultaneously LOVE organizing, cleaning, planning, etc and CAN NOT for the life of me maintain it for myself. I have very few habits but the ones I do have will throw me into panic if they are interrupted. - I have serious auditory sensitivities: if someone in the house is putting away dishes it can send me into a rage of discomfort. I don’t listen to music bc I hate headphones and don’t actually enjoy most music for longer than a few minutes, it just makes the world feel louder and more crowded.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion